Epilepsy, frustrations, poem. - Epilepsy Research...

Epilepsy Research Institute

2,345 members674 posts

Epilepsy, frustrations, poem.

Nicole1 profile image
11 Replies

I have posted a couple of my poems on here, relating to my epilepsy and a few people related and understood what I had written, which made me feel not so alone in this condition. Again I had another shitty day and night with seizures and the pen took over. My latest poem.

'Wrote another poem tonight, after a shit night and day with seizures. I haven't captured half as much as I wanted to, but I wrote this as an expressive way to deal with my anger. Not my best work, but I feel a shit ton better for writing it and getting it off my chest 👍👌

'Kneel to me'.

So today I have had,

The most extreme de ja vu.

Hanging... Waiting...

Expecting from you.

My brain starts to fail,

In this horrible state.

My mind is a blur,

Whilst my brains in debate.

My brain to my body,

"Are we ready to fit?".

In reply, "I don't think so,

I want to enjoy every bit".

As I sit here in limbo,

Not knowing what's real,

I NEED this to be over,

But instead I just kneel.

Nicole. ™️

Kneeling might feel like giving in and giving up but believe me, I won't. 💪✌️👌

Written by
Nicole1 profile image
Nicole1
To view profiles and participate in discussions please or .
Read more about...
11 Replies
Lj08 profile image
Lj08

Get those boxing gloves on and tell that dam fit that you and Bryan the punch bag won’t be his punch bag today,

Lj x

Nicole1 profile image
Nicole1 in reply toLj08

Thankyou ❤️ ❤️ ❤️ xxx

You have real talent 👍 and keep fighting never give up 😄

My GP tried me to accept it but I wouldn’t saw my specialist & neurologist, after a few years of changing drugs think I might at last found the right drugs, but never assume it’s can always be lurking there!! 😄

Love reading your poetry Nicole1 😄❤️. Take care X SJ

Nicole1 profile image
Nicole1 in reply to

Thankyou so much ❤️❤️❤️ that means the world to me, honestly. Xxx

rustypen31 profile image
rustypen31

I also write poems about epilepsy and write new airs for songs. Would you like to see some of my attempts?

Nicole1 profile image
Nicole1 in reply torustypen31

Yeh x

in reply torustypen31

Yes please 😄👍

Lovely Nicole... I've had epilepsy for 45 years and won't quit!

Nicole1 profile image
Nicole1 in reply to

Love that attitude ♥️♥️♥️ I'm ten years this year, since being diagnosed, but no way am I ever going to stop fighting this 💪💪💪 #epilepsywarriors 👌 xxx

Johnwonn profile image
Johnwonn

Hi Nicole,

Hope all's well. Love the poem. You've expressed some of my experiences so well, though my seizures have been controlled for a few years now.

I just came across your poem by chance, I want to do an art project and I'm looking for other creative people to collaborate with (just posted about it) and put together a shared project, hopefully an exhibition, to share their experiences of epilepsy, and especially of their seizures.

Would you be interested?

WR John

Nicole1 profile image
Nicole1 in reply toJohnwonn

Absolutely, where are you based? X

Not what you're looking for?

You may also like...

Help in uk for epilepsy?

Hi my partner has epilepsy and had his firat seizure a year ago aged 25. He has very violent...

Epilepsy

Hi my child has suffered with generalised epilepsy since he was 7 he is now 19, most medication and...
Chaddy96 profile image

New to epilepsy/seizures.

Hi I'd like to tell a bit of my story and grateful for any advice or feedback. I am a Community...
Pauley profile image

Epilepsy diary graph

Hi I'm newly diagnosed and I'd like to know how to create a graph so I can record my many seizures...

Teporal Lobe Epilepsy

Hi, in September 1999 I suffered a gran mal seizure, had my heart stopped after 2.5 hour fit. It...
DarrenC profile image

Moderation team

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.