Some help : Hi all,im new to all this... - Epilepsy Research...

Epilepsy Research Institute

2,345 members674 posts

Some help

shazza_01 profile image
5 Replies

Hi all,im new to all this so this might be a bit of a script,but I'm at my wits end. About 2 years ago I started to get a black shutter over my left eye and floating dots I just put it down to stress but I then started to get numbness in my fingertips on my right hand this progressed to numbness in my face,part of my back and leg and arm followed by uncontrollable jerking,after a number of MRI,CT,PET SCANS I've now been diagnosed with having a number of mini strokes and focal epilepsy and a number of blocked arteries so I've been put on so far clopidogrel 75mg blood thinners also I'm on lamotrigine 200mg per day I'm still having a number of seizures a day I'm due to see my GP to get the dose put up. I would really like to no if anyone felt/feels as unwell as I do? Here's some of the symptoms I get on a daily basis.

Tired/drained but unable to sleep

Feeling very sick

Headaches/pressure in my head

Muscle pain/joint pain

Dizzy constantly/very unsteady on my feet.

All this was before I started my medication so I'm not sure if this is all down to what I've been diagnosed with.

Any help would be great,thank you

Written by
shazza_01 profile image
shazza_01
To view profiles and participate in discussions please or .
Read more about...
5 Replies
UnwelcomeVisitor profile image
UnwelcomeVisitor

Hello,

Anti epilepsy drugs AEDs alone can cause all the side effects that you speak of. Likewise in some of us the tiredness that you speak of can be an effect of your epilepsy.

If you are unhappy I would suggest that you ring up your neurologists secretary and explain to her. She can either pass your comments onto your neurologist or onto their epilepsy nurse.

I wish you well

Richard 

shazza_01 profile image
shazza_01

Hi,all the symptoms I'm getting was before I even started any of my medication.

Evangilene profile image
Evangilene

TRy to see a neurologist ASAP so that you get advice from the top !!!  The average GP does not have enough knowledge about Epilepsy and just dish out drugs !!!

daisyd profile image
daisyd

I have Hughes syndrome which I think caused my epilepsy please look at the Hughes syndrome web site on here,also Hughes foundation site I think it would be very helpful to you

shazza_01 profile image
shazza_01

Hi,can you tell me how it treated plz?

Not what you're looking for?

You may also like...

Keppra

Hi, I'm new to this group. I have been on a differentp art of this sight for years but only just...

Help?

Hi all, I hope you are well! I'm a 22 year old woman and I've been suffering from some odd...
kittyIM profile image

New late-onset person needs help!

I was shocked to receive the diagnosis after 2 years of intense stress and a lifetime of poor...
oldcouple profile image

Company blocked my number because of epilepsy

Hi everyone, I've been looking for work for over 3 months now since I finished my A levels and...
Ruby5 profile image

First experience

Hi My son had his first seizure on 1st Oct age 17, it was a complete shock. He had had jerks for...
Callummum profile image

Moderation team

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.