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Mnavogel profile image
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Hi guys, I'm from Oxfordshire and been diagnosed with Epilepsy for 7 years. I usually have them only once a year but now I have had 3 in under 4 months. Anyone know why this happens? I am taking Lamictal 100MG and 25MG at night. This is incredibly frustrating and is affecting my well being.

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Mnavogel
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7 Replies

Hi Mnavogel,

Many thanks for your comments above. It can happen that people go years without seizures, then they start all over again. My longest without a seizure was 15 months, at the moment 10 months free. If happening often, I suggest you see the Neurologist or Doctor and get an update on your medication or other aspects. Perhaps the dosages need amending? I found I went through episodes and since dosages were changed, I have been under more control.

Contact the Doctor!

Regards,

Les

Mnavogel profile image
Mnavogel in reply to

Thank you Les for your advice. I will be talking to a Epilepsy Specialist Nurse on Monday. Just have to start writing my questions to ask her so I don't forget!

in reply toMnavogel

Glad to hear you will be seeing the Nurse. Good luck and keep us posted with her advice or suggestions.

All the best.

Les

DarrenC profile image
DarrenC

I feel that with my temporal lobe epilepsy, as I got older my heart weakened and my lungs shrank. This raising my nerve activity around, various stresses throughout my daily life. Then as I started to build my strength from my regular exercise, it all became a lot more controlled. The relaxation from my natural highs with endorphin, brought on through the exercise, made me a lot more confident with my feelings. Reducing the nerve activity with the strengthening of my heart, the opening of my lungs and the building of my muscles. Realising it's a very physical condition, from a mental affliction.

Mnavogel profile image
Mnavogel in reply toDarrenC

Thank you for your advice. I try to do exercise when I can. Do you take medication to control your seizures?

DarrenC profile image
DarrenC in reply toMnavogel

I just take 150mg twice a day of pregabalin, and 100mg of quetiapine in the evening for some rest. But still feel that breaking the pain barrier through exercise, has given me a strong understanding of my feelings, taking the psychological stress from my epilepsy away from my thoughts. My physical strengths make me a lot more confident in myself, and my epilepsy if it turns up is a lot more of a physical wave of energy, instead of an extreme de ja vu of psychological panic. My epilepsy doesn't frighten me like it use to, I believe that I was born with it, but didn't know I had it until I was 21 years old. This says to me that as I got older, my heart got weaker, and my lungs shrank. With this the nerve activity became to heightened, and the afflicted cells in my brain were seeing activity to often, causing heavy reactions!! and now with my fitness, and giving up caffeine, nicotine, alcohol I'm not getting much from my epilepsy. And if it does turn up it's not doing anything like it used to. I saw a neurologist, and all he done was create frustration in me through his pure ignorance!! they don't listen to a word in my understandings of my condition.

Mnavogel profile image
Mnavogel

Thank you for your reply to my post. I haven't introduced anything new to my diet. I am very conscious about my diet and try not to have anything in excess. Can reintroducing things such as the foods below affect epilepsy even more?

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