Bad Leg Swelling: Looking for advice please... - Endometriosis UK

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Bad Leg Swelling

Treesy123 profile image
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Looking for advice please…

I’ve lost all sensation in a patch on my left thigh. Down the L1/L2 nerve. I have back problems anyway, bulging disc etc but also severe endo and adeno. Could this be linked to my endo?

My other leg is swollen. D-Dimer Test is positive but they are still investigating this. Could this also be linked to my endo? It’s just getting worse! It’s so swollen.

I’ve been diagnosed with frozen pelvis. My bowel is wedged between ovaries etc. I have severe stage 4 endo with DIE and adenomyosis. I have cysts on my ovaries, a fibroid and an adenomyoma. Everything is adhered to everything else and they suspect bowel involvement.

I am on the waiting list for urgent surgery but still looking at around 2 years. This will be my 3rd operation (still have a large incisional hernia from my first op (laparotomy) which I’m hoping they fix this time).

I’m awaiting an MRI (urgent spine) but just wondering whether any of this could be caused by the endo or whether my back has deteriorated further.

This has happened to both legs in the space of a day and the hospital don’t think it’s linked atm so it’s being investigated separately.

Hope everyone is having a pain-free week xxx

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