New and confused : Hey guys, I'm totally... - Endometriosis UK

Endometriosis UK

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New and confused

ellis13 profile image
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Hey guys, I'm totally new to this, but glad I've joined so I can read some of your stories. My periods started heavy at the age of 14, and doctors tried me on a lot of different pills to help control but nothing was helping. The pain then began and i was doubling over in pain and I remember several times fainting at school and home from the pain and heaviness of the bleeding. The pain also makes me sick and very lethargic. Again I kept going back and forth from the doctors for help and they kept putting me on pills and then the depo injection. My weight was up and down with all the tablets. I was given mefanamic acid to help the pain. I'm now 20 and still in the same boat. My periods vary from having a huge one to having nothing for months. Around a year ago my tummy started bloating, and makes me looks like I am pregnant. My tummy bloats all day every day and it's so uncomfortable. I was rushed into hospital with the pain and bloating and was brushed off because my bloods came back fine. They put it down to something I ate! Again back and forth from the doctors and finally something is being done. I refused anymore pills because nothing was helping and I was fed up of being messed around. I'm now awaiting my letter for the gynaecologist. The GP has spoken to me that the issue may be endo. So until then it's all a waiting game...

Ellis x

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ellis13 profile image
ellis13

Hi Linda, I am located in Hereford. I'm just glad finally I'm getting somewhere, but very slowly x

ellis13 profile image
ellis13

Thank you so much for the advice. I've been on so many different pills and they never help, so I was annoyed when they said about trying another hormone pill out. That's when I refused and said that I've had enough of being messed around. One GP said that because my ultrasound scan came back fine that there is nothing wrong with me. Then another GP was helpful and finally shone some light into what may be wrong. I will definitely look into seeing a endo specialist rather than gynea. I agree that I'm ready for a lap now to see what's going on. Thank you x

AshleyEngineer profile image
AshleyEngineer

Hi Ellis,

I also had bloated to the point of looking like I was pregnant. I've never fainted from the pain, but it was interfering with my work. I just finished my third week on "endovan" and my bloating has gone down SIGNIFICANTLY (like 10% circumference reduction). I'm keeping a journal of my symptoms (before and after) and my first period while taking endovan was soooooo much more bearable than before - even though I'd only been on it for a little over a week at that point! I'm still a little lethargic, but I don't feel as drained as before. I have a post on this (I don't know how to share links on here... search "review of endovan" or just "endovan" will probably bring it up) and I'm going to update it again next week since that will be the 1 month mark.

Everyone is different, and my experience may be a fluke, but I definitely think it's worth it to try if you've tried everything with the doctors (or even if you haven't!). It doesn't require a prescription because it's all-natural, so doctor's won't suggest it (at least not here in the US).

I really hope you are able to find something that helps you! You are not alone!!!

- Ashley

ellis13 profile image
ellis13 in reply to AshleyEngineer

Hi Ashley, oh brill thank you! I'm UK based but I shall definitely look into trying that. The bloating is ridiculous and sooo uncomfortable!

Thank you for the advice

Ellis x

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