I'm on here to have a moan because I feel down. Some of you might know that I had radical excision 2 months ago. I had endo removed from my bladder, ureters, uterosacral ligaments, Fallopian tube. My ovary was adhered to ovarian fossa which was the result of a previous surgery to excise an endometrioma cyst which had fused to the pelvic wall.
On top of all this I decided to pay for total pelvic peritoneal excision. It was a big decision but I felt confident that this could reduce my chances of endo coming back in future by removing all microscopic disease in the peritoneal lining.
It cost me £7000 and my health insurance coughed up the rest.
The recovery was much worse than a lot of women have said on here. For a month I felt incapacitated at times. I also felt I was having some sort of rectal prolapse...the pressure was so intense. On a positive note my skin cleared up , hair stopped falling out and I really did feel endo free.
1st period was horrendous but I was told to expect that. Then I had a horrible ovulation. My PMS has been so intense and I am now on cycle 2. This period is also very painful. The pain is worse than before the surgery. I am 8 weeks post op . My ovaries feel like they are been squeezed. The cramping is horrible, my lower back pain is still there.
I'm so down because I really hoped that TPE was the answer. How can endo be taking over again so quickly. I feel so down that I'm slipping off the wagon with a health lifestyle, putting on weight again. I'm snappy with my family. They all thought that this big op would sort things out and clearly it's not.
I'm also so desperate to start a family but no chance of natural conception due to male infertility . We are waiting for IVF and I just don't know if I can do this anymore. I just want to go on the pill now and be done with this pain for a while. I need a break!
Please can anyone offer support/advice?