Just been diagnosed with endo. The gyne still doesn't know though if my monthly headaches nausea and fainting spells are associated? Can

[Emmaev]

Anyone please let me know if you are affected by this. Thanks x

[Merlion09]

Hi Emmaev

I still have nausea and my consultant and gp are surprised that I do. headaches, nausea and fainting are common symptoms of endo and I hope you, like me, they will soon become less and less frequent.

:0) x

[wp22]

Of course they are especially if they are 'monthly' that should be soo obvious to any doctor, honestly they never cease to amaze me as the facts are staring them in the face yet they refuse to see the blindingly obvious. Gp,s need to be trained in women's gynea health as none of them seem to know anything about us. Disgusting. Many, many women get headaches and fainting as part of their endo symptoms, me included in the headaches, ones where I am sick too. We suffer so many monthly symptoms and if they are cyclical they are related to endo. Your doctor is yet another rubbish one x

[wp22]

Sorry it's your gynea who you are talking about, even more disgusting that he doesn't know this fact, sorry but it really annoys me that they know little x

[hayls]

Hi wp22

I don't want you to take any offence but please consider your tone when responding to posts on here, headaches and neuro science are a very very complicated area and it is not as black and white as you have stated in your responses above. I have spent years seeing neurologists for a serious neuro condition which the main symptom is severe headaches and know how difficult it can be even for top neuro consultants to get to the bottom of why someone has headaches and fainting etc.

It would be very dangerous for a gynae to just assume that a patients headaches are related to endo, particularly when it is not regarded as a classic endo symptom and could be something else all together. Chances are it is related to hormones, but that in itself does not necessarily mean it's endo related. For me my neuro condition is not due to my stage 4 endo but was brought on as a rare side effect to the pill years ago - so hormones have a big involvement but there is not yet a proven connection between endo and headaches - my neurologist is one of the leading neurologists in the country and he has done a lot of research on it.

This forum is for support, please don't be so blunt in discrediting a gynae or GPs without all the facts. I know we all get frustrated with our doctors sometimes and there is a shortage in endo specialists but it sounds to me like this gynae is actually doing his job really well by not jumping to assumptions on what may be causing some of Emmaev's symptoms, he will be well aware that there is a link between hormonal changes and headaches but, like me, it may not be due to having endo in this case.

[hayls in reply to hayls]

PS: By dangerous I mean that if my gynae had dismissed my headaches as an endo symptom it is extremely likely that I would have gone blind by now. So apologies if I sound a bit harsh but it's a really important point x

[wp22]

Hayls

Just like Merlion, my gynaecologist said and myself all know that migraines, sickness and fainting and symptoms of endo,,,,, they are due to hormones just like most other things in our bodies. I never had headaches, never mind migraines before I had. endo. It's associated with endo on the bowel. As I have bowel endo I get the sickness and migraines unfortunately x

[hayls in reply to wp22]

Hi wp22

I fully agree that many women with endo suffer from severe headaches, sickness and fainting, I too suffer with these, badly at times, and have severe endo involving my bowel and recently had bowel surgery, and yes its all connected to our hormones. All I'm saying is that these symptoms are recognised as common symptoms of periods, birth control pills, early pregnancy - basically any hormonal change in women and doctors are well aware of this, but as far as my gynae and neurologist are aware there is no medical evidence that it is specific to endo sufferers or that endo sufferers are more likely to suffer from it, so particularly if it is a relatively new symptom a doctor wouldn't be doing their job if they immediately and automatically put it down as due to endo, as that may not necessarily be the case x