Dectapeptyl

[Sweetcheeksid]

Had first jad Wednesday 11.4mg not happy bunny side affects are horrid just don't feel right

[Impatient]

sounds like you are entering the flare stage which should make things a lot worse for a couple of weeks or so, then ease off for a bit, but it gives you a pretty good idea how you will cope with the remaining course of treatment if you decide to continue with it.

You can ask your GPfor HRT while on the drug to reduce some of the side effects, but it doesn't affect all of them.

And remember that if it is far worse than you were expecting and you are really struggling with it, then you do have the option not tohave the next implant.

It is entirely your decision to carry on or stop with what you have had so far and go back to having periods and pain killers as before, or trying back to bac birth control pills or perhaps the mirena coil if you haven't yet tried those options.

hugs to you, been there and won't do that again. My experience was just awful, like many others it wasn't something i would wish on my worst enemy, and for the time being you do have to put up with it till you get to the point of having the next implant in which case you then need to make a tough decision as to whether you have the 2nd one or stop right there.

If you do stop then it could still take a while for your periods to start up again as the drug wears off out of your body over the next 4 months.

You have my sympathy. Stay in bed, get plenty of rest, eat regular but lighter meals than you did before. try and sleep through it as much as you possible can manage to, even if it is short naps and drink lots of water to stay hydrated when the hot sweats start hitting you.

[Sweetcheeksid in reply to Impatient]

Thanks so much for resoonding don't really have much choice got stage 4 endo on bowel bladder and inside uterus as well as the usual so having the highest dose for 12 was before they can operate, but at least I'm not going mad legs etc so painful it hurt to out clothes on at when'd grrrrr xx

[Impatient]

you still have a choice. i am also stage 4 endo, with endo having now invaded bladder and bowel too. lost an ovary and tube already and had 8cm endometrioma and 6cm endometrioma removed and 2 cysts burst in addition to those, and took 29 years to finally have my op. I stopped after 4 months of Zoladex hell. and it was the best decision i made.

I am now coping with mirena and appropriate strength pain relief, whereas before the big op had been guzzling paracetamol like smarties.

I wouldn't touch that GnRH stuff again for all the tea in China.

I had just about every single zoladex side effect on their published list plus more besides that, and was so very unwell with it all. An absolute misery to share a house with.

Teenage temper tantrums on an epic scale and quite the opposite to my normal character. Luckily my mum quickly realised it must be the drug and not the real me, having known me for so long, and by that stage I was in my early 40s, so well past any teenage traumas.

I couldn't cope or function on the drug, and now I am off them and managing with the current regime, I am at least able to work every day for reduced hours, absolutely knackers me out and I have a long sleep as soon as I get home, but I am able to function as a human again. I a not fully recovered from zoladex as it robbed me of my short term memory function too, which has been a real blow, but i am getting better at coping with that brain damage side effect of the drug.

I still get pink pee, and bleeding from the rear end when the endo is active, my mirena failed early and I am now awaiting surgical removal of it and replacement. But the NHS as ever are taking their sweet time over that. I have a severe deformity of the uterus, hence mirena was surgically installed and needs surgery to come out again.

But while it was working it made such a huge difference and with nowhere near the bad side effects of GnRH.

So remember you most certainly can stop if you can't cope with it.

All it does is pause your endo situation, it doesn't cure or stop it permanently. when your periods return you will be right back where you started and back on the pain killers which are much better for the rest of your body than chemo ever will be.

Give it till a day or two before the nxt one is due and assess how you coped.Defo keep a diary of your side effects incase it does take out your memory too.

I kept a diary as i went along as i realised my memory was quickly becomming a real issue. and thank god i did keep a diary otherwise i wouldn't be able to now go back to it and share my experiences on the drug.

I know i had supper a short time ago, because my hands smell of washing up water, but i haven't a clue what i ate. That is what losing short term memory function does. It robs you of the ability tio recall all recent activity and events. I don't remember to pay bills unless i pay them as soon as i get them, i forget where i put them, and have no recollection that they need paying of if they have been paid, i always forget where i parked the car, and frequently set off on a driving mission (perhaps to the shops or on an errand) and get to the end of my road and forget why i am even in the car.

So my warning is a serious one. not everyone suffers badly on the drugs but if you do, then you must seriously consider stopping rather than making the rest of your health worse by continuing.