Ivig treatment, what happens of you s... - Encephalitis Inte...

Encephalitis International

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Ivig treatment, what happens of you stop?

RainthenSun11 profile image
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Our daughter has had 4 rounds of ivig. Her brain swelling (basal ganglia) has practically returned to normal however her behavioural issues indicate scarring to the frontal lobe and loss of executive function. The neurologists have suggested stopping monthly ivig as the inflammation has gone down. I'm scared that she will relapse, her symptoms might worsen? I've heard people have a years worth of ivig? She is improving every so slowly so I don't want to see her go backwards.. anyone have experience with this??

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