Suspected brain changes

[Babs40]

My son had encephalitis when he was 1, then had transient encephalitis for the next few years. We didn’t know for sure what it was till years later, and because he was so young we didn’t know or think to question any changes to his brain.

now he is 14 and will be starting his GCSE’s next year, and his struggles to process things and remember things he has learned are really standing out to us. After a look on this site, it seems this could due to him having encephalitis.

is there a way of finding out the damage it could have done? Also, are there any tips to help him with his struggles with processing and memory?

[EncephInternational Partner]

Hi. I am sorry to hear about your son's difficulties. If you need, please don't hesitate to contact Encephalitis International on [e-mail]

[Paula-38]

Hi Babs40,

I had encephalitis

and status epilepticus at the same time the day after my first birthday, the same age as your son was when he had it.

I only found out about 3 years ago that I even had a brain injury but 5 years ago I found Encephalitis International helpline and they informed me about all my after effects and they taught me a lot about it which I had never had before.

Processing speed has been a major after effect for me, although it seems to be a bit better now (I'm in my late 40's now). I never had memory problems other than watching TV. I have been told I have a great memory. I wonder whether your son would like to be connected with me.

Please feel free toask me any questions at all .

I am more than happy to help.

Paula-38

[Neuro-Gee]

Dear Babs40,

I'm sorry about your son's condition.

Now might be the ideal time to seek assistance for your son. Securing support before he begins his GCSEs could alleviate any anxiety or stress he might be experiencing.

Having had encephalitis over 40 years ago, I've struggled with memory and concentration. Despite efforts to compensate through repeated reading, summarizing notes, and constant revision during my academic and professional life, I was merely masking the symptoms of encephalitis. Early support aimed at enhancing memory and concentration might have mitigated my stress and anxiety.

I encourage you to reach out to the Encephalitis Society. I'm sure their compassionate team will likely suggest comprehensive support through a neurologist, psychologist, counseling, and more. 🙏