Hello, my 40-year-old husband was diagnosed with Anti-NMDAR Encephalitis back in February (all his tests came back clear, so this is a clinical judgement diagnosis). After a two week stint in hospital he was released with a course of steroids and anti-psychotic medication. We are so grateful he was able to leave hospital walking and talking.
Initially his recovery was going great and he was full of beans and energy with his brain firing like he used to - that waned as his steroid dose reduced. But 4 months on, and now he's finished all his medication courses, his brain just isn't able to function like it used to - he struggles with cognitive ability, executive function and some memory loss.
This could be a time thing, we appreciate we are still early in this recovery but it's been suggested he might need to go back on the steroids for a little while longer (not something he's keen to do as the withdrawal from the initial steroid treatment was really tough).
In the meantime his neurologist has referred him for Neuropsychometric tests at Kings College London, but we're not sure what to expect? Will this 2 hour appointment be the answer to his problems? Or is that too optimistic? My husband is concerned that having never had any of these tests before the AE, they won't be able to know what things used to be like. Is he right on this?
Would love to know of other experiences from people who have been through the Neuropsychometry route after AE. His appointment isn't until August - so quite a wait, and we're just looking for insights to help us manage expectations.
Thank you in advance!
