Taste issues : I have never had a... - Encephalitis Inte...

Encephalitis International

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Taste issues

alpappy profile image
8 Replies

I have never had a problem with basic tongue tastes ie sweet salt bitter but cannot still after four years eat fried foods or even baked things like pizza it's drives me crazy Dr Alan Papert Queenstown

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alpappy profile image
alpappy
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8 Replies
OldGnome profile image
OldGnome

Hello alpappy, haven't "seen" you around here in a while and hoped you were doing OK. The taste issue seems to affect quite a few of us. Myself, I am just the opposite in that respect. As I write this, I remember an acute increase of taste perception while being in the hospital. I remember getting pierogies and a very large veggie burger there that were so flavorful that I tried to bribe one of the foodservice personnel in order to obtain more pieorgies!!

In my 4th year of recovery, my taste sensors may prove to be a curse; my weight has increased too much for my liking and I am having to eliminate a lot of things I enjoy, like chocolate, cookies, and other sweet treats. Come to think of it, some nice freshly baked raspberry scones sound great about now!

I truly hope your sense of taste returns; food is one of the basic necessities of life that is to be savoured and enjoyed to its fullest!

All the best to you!

OldGnome

alpappy profile image
alpappy in reply to OldGnome

HI I have been mostly ok The booster jab knocked me about and have felt quite low but I am back Thanks for concern and kind wishes

kitnkaboodle profile image
kitnkaboodle

Yeah, I don’t like bread products or baked goods either after E. Naan and sourdough are okay, but pizza and cake are nasty. I thought I’d hate chocolate forever, but then I tried my sister’s cream cheese brownies yesterday… the mix smelled rancid, but the brownies smelled and tasted like they should after baking. Crazy!

alpappy profile image
alpappy

I just think and feel ten years older big gaps in my medium term memory cant enjoy most of what I used to Seems often like life is just pointless

kitnkaboodle profile image
kitnkaboodle in reply to alpappy

I relate to this. Many days, my body feels like it is at the end of its lifespan. I’m 25, and I feel like I’m 100. The list of what I cannot do is very long, but I try to be grateful for what I can do. Ultimately, I rest in knowing that, one day, everything sad will become untrue. Revelation 21:4.

Remos profile image
Remos

Hi Alpappy,

Good to hear from you again. Glad you got over the booster jab effects.

I’m ok with food tastes generally although anything savoury no longer tastes quite the same. Anything sweet seems fine.

Your last comment resonated with me. I’m also going through a difficult period for various reasons so I can appreciate your feelings of despondency at the moment. However, we all have to fight on. We can only do this one day at a time. It’s not easy I know but let me offer this in support. I hope it helps:-

“Your are not weak. Fighting a war inside your head 24x7 requires real strength. Never forget how strong you really are!”

It’s ok not be ok.

Please keep posting.

Remos

alpappy profile image
alpappy

Our govt has passed a law where if you have a condition that has no known cure and two doctors sign off that you are of sound mind you can take a pill to end your life On more than one occasion have I considered as a good way out But then I think about all the people that love and care for me as well as the huge effort the NHS has put into me too and have decided that as long as after each setback I do get back to the "new normal" I will go on....time will tell

kitnkaboodle profile image
kitnkaboodle in reply to alpappy

I understand. I’ve thought about death a lot. I’ve often cried out in exasperation, “God, why didn’t you let me die? It would have been so much easier.” For whom? Why? How do I know that?

The moment we take our hands off our lives is the beginning of existential freedom and eternal joy; it’s a process, not one event. We are not our own. “To live is Christ, and to die is gain” (Philippians 1:21). If we were meant to die, E would’ve taken us. It is not our time to die.

This is one of the first songs I remembered hearing out of hospital:

youtu.be/zulKcYItKIA