Mini Milestone

[Elle2090]

I just wanted somebody to share this with cause I'm so excited. Six months post hospitalization I played my first field hockey game since August last year (2020) today! I'm so happy cause I've played it most of my life and love it I was worried and getting prepared for the fact I wouldn't play again (I'm also 30 years old too lol) but I played for 40 mins, substituting in between, but I felt like I was on a high! Although I'm still worried that I might drop in the middle of the game with a seizure :/

Leading up to the game, 2 months prior, I began walking and then breaking into short runs and also small HIIT sessions at home, but even still I didn't think I'd be able to play. I still struggle with fatigue and I'm sure I will feel it in the next couple of days.

I just wanted to share that milestone and hope it gives people hope too 💕

I would love to hear if you have similar stories of being able to return to sport or other activities post discharge/recovery?

[Gandalf2]

That's great, we're all in that situation where just getting back to our 'normal' is almost an impossible dream. Well done and keep pushing. Best Wishes G2

[Jensibel]

Wow! You should feel so proud of yourself for getting back into exercise and hockey. It's all steps in the right direction. About a year after my e, I was also so chuffed with myself when I started going to a keep fit/yoga group. It's like a breath of fresh air.

[Ocean96]

Hey Elle2090!

WOW THAT IS AMAZING!! You should be so proud of yourself!!

Thank you SO much for sharing such a happy and inspiring stoey with us! You have made me smile so thank you

Keep doing what your doing and would love updates on how you are doing!

I am recovering from Autoimmune Encephalitis and I just got accepted into a Masters on Tuesdays so woop woop!

All the best

[Elle2090 in reply to Ocean96]

Hey Ocean96 !

How is masters going for you at the moment?

I played a full game last Sunday, scored 2 goals and made players player for the match which I'm super stoked about. However the week after I was severely fatigued which didn't happen the last time I played 😶

Elle90

[Ocean96 in reply to Elle2090]

Hey Elle2090!

Aw thank you, I start in September - so excited!

I've just started a part-time job last week - so far so good but it will take a while to build up my confidence!

Wow! That's incredible! I can only imagine how tired you were after but you had fun and enjoyed yourself which is fantastic!

When I do something that takes up a lot of energy, it takes me a week or so to recover too!

All the best

[wherearemypillows]

Aww that's awesome, thank you for sharing - I can imagine that being an emotional game for you! I hope you have many more hockey games ahead of you 😀

I am recovering from a relapse last year which was finally treated with aggressive therapy just a couple months ago. My recent milestone is getting some psychometric testing done, which was compared against testing I had gotten last year. Last year's was from when I "claimed" to be relapsing, but certain doctors wouldn't believe me and disputed my original encephalitis diagnosis because the overall test conclusion was that I was still performing cognitively in the normal range. But I felt debilitated and had to quit work!

The recent testing showed MASSIVE improvement, and I feel more and more like myself again - it was very validating to receive, especially after the gaslighting that I underwent through much of my health journey.

[Elle2090 in reply to wherearemypillows]

I'm sorry to hear about your relapse. What were the signs? But huge congratulations on the improvements! Every win must be celebrated ❤

[wherearemypillows in reply to Elle2090]

My primary symptom of AE has been immense cognitive dysfunction, and over the span of a couple weeks I felt the onset of what I imagine a rapid onset dementia feels like. I used to write a lot for work, and composing sentences became a massive undertaking. Thanks for the support!