Marfanoid Phenotype : Has anyone else... - Ehlers-Danlos Sup...

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Marfanoid Phenotype

Aurora20 profile image
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Has anyone else been diagnosed with Marfanoid Phenotype with their hEDS? X

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bluecar15 profile image

A rheumatologist once wrote that I had a 'marfanoid body type' in a report confirming my hEDS. She measured all my limbs and stuff to find this?? Honestly she was the only one though and I've always found it a bit strange as I have the least marfans like body. I'm very short for one

Hellofabore profile image

The physio who diagnosed my EDS said also Marfanoid habitus. I'm just under 5'6" think it's more to do with arm height ratio than height. I am short-waisted with long legs for height, and long fingers - arachnodactyly.