Marfanoid Phenotype : Has anyone else... - The Ehlers-Danlos...

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Marfanoid Phenotype

Aurora20 profile image
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Has anyone else been diagnosed with Marfanoid Phenotype with their hEDS? X

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Aurora20
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bluecar15 profile image
bluecar15

A rheumatologist once wrote that I had a 'marfanoid body type' in a report confirming my hEDS. She measured all my limbs and stuff to find this?? Honestly she was the only one though and I've always found it a bit strange as I have the least marfans like body. I'm very short for one

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Hellofabore

The physio who diagnosed my EDS said also Marfanoid habitus. I'm just under 5'6" think it's more to do with arm height ratio than height. I am short-waisted with long legs for height, and long fingers - arachnodactyly.

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