Marfanoid Phenotype : Has anyone else... - The Ehlers-Danlos...

The Ehlers-Danlos Support UK

3,024 members944 posts

Marfanoid Phenotype

Aurora20 profile image
2 Replies

Has anyone else been diagnosed with Marfanoid Phenotype with their hEDS? X

Written by
Aurora20 profile image
Aurora20
To view profiles and participate in discussions please or .
2 Replies
bluecar15 profile image
bluecar15

A rheumatologist once wrote that I had a 'marfanoid body type' in a report confirming my hEDS. She measured all my limbs and stuff to find this?? Honestly she was the only one though and I've always found it a bit strange as I have the least marfans like body. I'm very short for one

Hellofabore profile image
Hellofabore

The physio who diagnosed my EDS said also Marfanoid habitus. I'm just under 5'6" think it's more to do with arm height ratio than height. I am short-waisted with long legs for height, and long fingers - arachnodactyly.

Not what you're looking for?

You may also like...

Non alcoholic fatty liver disease and Ehler Danlos syndrome

I was recently diagnosed with NAFLD and was wondering if anyone else with EDS has experienced these...

HSD newbie

Hi, After a long series of various doctors who each had a say in what I was dealing with and a...
justiio profile image

Headaches and dry nose

I have lots of debilitating symptoms but there is something really troubling me I would like to get...
Details profile image

SPD Pelvic Girdle Pain

Good morning. 😊 Has anyone been diagnosed with Pelvic Girdle Pain (PGP) or Symphisis Pubic...
LoopyLou72 profile image

Jaw and Throat Spasms

Over the last year I've had swelling on the right side of my throat with swelling in the face and...

Moderation team

edsuknikki profile image
edsuknikkiPartner

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.