For those with pectus carinatum (I th... - The Ehlers-Danlos...

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For those with pectus carinatum (I think that’s what it’s called)

JennaShi profile image
2 Replies

Hello, does anyone have the protruding bump on your chest? If so, have you gotten an xray of it and was it worth it?

Mine isn’t very big and I’ve found while researching online that people say it’s relatively harmless. Do you know if this is true?

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JennaShi profile image
JennaShi
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JennaShi profile image
JennaShi

@jmiller623, I realize I had already posted it. You don’t have to respond if you don’t want to but here it is

Adlon57 profile image
Adlon57 in reply toJennaShi

I have serious pectus carinatum a leftover from meningitis when aged 10, I also have juvenile myoclonic epilepsy, after over 400 seizures [a major fall off an exercise bike in 2017, broke at least 5 ribs], my rib cage is like paper, saw a GP today, in inspecting it put out a rib near my sternum! CPR on me would be impossible. I badly need some sort of protector vest, I am completely out of NHS's range I need some sort of specialist's help A.S.A.P!

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