Occupational Therapy?: Following on... - Ehlers-Danlos Sup...

Ehlers-Danlos Support UK

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Occupational Therapy?

Stretchygirl profile image
4 Replies

Following on from my previous post, i'm just wondering what people thought about occupational therapy? I have been diagnosed with hyper mobility syndrome, and possibly EDS (just waiting for further appointments). I've never had it before, and am just wondering what to expect from my first and any other follow up appointments?

Thanks x

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Stretchygirl
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lancashireflower profile image
lancashireflower

I found a specialist in EDS extremely helpful. Understood the problems. Made me splints to support my frequently dislocating/ subluxing thumbs. Gave advice, aids, information, links, sympathy! But it was an OT specialising in hypermobile issues .

Stretchygirl profile image
Stretchygirl in reply to lancashireflower

Okay, that sounds great thank you! Long as it'll be of some use to me, I don't mind haha!

DISC profile image
DISC

I found OT great, but found Physic useless. OT made custom made hand splints etc and arranged a pressure relief Repose mattress which is fab as before I could not sleep due to pain - so ask for one of the if you can! Good luck. Also get their email if you can, as it is really useful to contact them and ask questions sometime rather than having to go through the usual appointment route!

Stretchygirl profile image
Stretchygirl in reply to DISC

That sounds great, I've been having physiotherapy on and off since the age of 11, so I know the routine and the jist sort of thing with that. I'm hoping that its useful. And thats a good idea about the e-mail, cheers :)

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