Following on from my previous post, i'm just wondering what people thought about occupational therapy? I have been diagnosed with hyper mobility syndrome, and possibly EDS (just waiting for further appointments). I've never had it before, and am just wondering what to expect from my first and any other follow up appointments?
Thanks x
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Stretchygirl
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I found a specialist in EDS extremely helpful. Understood the problems. Made me splints to support my frequently dislocating/ subluxing thumbs. Gave advice, aids, information, links, sympathy! But it was an OT specialising in hypermobile issues .
I found OT great, but found Physic useless. OT made custom made hand splints etc and arranged a pressure relief Repose mattress which is fab as before I could not sleep due to pain - so ask for one of the if you can! Good luck. Also get their email if you can, as it is really useful to contact them and ask questions sometime rather than having to go through the usual appointment route!
That sounds great, I've been having physiotherapy on and off since the age of 11, so I know the routine and the jist sort of thing with that. I'm hoping that its useful. And thats a good idea about the e-mail, cheers
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