Hms but may have pots: How do you... - Ehlers-Danlos Sup...

Ehlers-Danlos Support UK

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Hms but may have pots

angie610 profile image
5 Replies

How do you become tested for pots? After a few people suggest I may have it after discribing my aches and pains on a fb hms/eds page. I agree with some of their suggestions, however, drs are not doing anything re, hms so, how do I get them to listen? If there is reason to believe I may have something else, and, or too.

5 Replies
trekster22 profile image
trekster22

Theres a STARS community on here who would know more about POTS testing.

stars.org.uk/

angie610 profile image
angie610 in reply to trekster22

Thank you, I will take a look.

trekster22 profile image
trekster22 in reply to angie610

NP :-)

The_Bear profile image
The_Bear

At the specialist clinic in London they check the spike in your pulse on going from laid to standing and if there's anything suspect there is the tilt table test

angie610 profile image
angie610

Thanks, hope I get to go one day.

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