Hi. My Physio 'diagnosed' EDS a couple of months ago - it makes sooooo much sense - and GPs has given me codeine to cope with the pain. My biggest problem is that I seem to be getting worse almost on a daily basis. More and more areas are in pain. This week my Achilles tendon is rather painful and has a little bump on it. Im beginning to get a little bit scared. my GP doesn't seem overly concerned or, dare I say it, particularly well informed. I also have Graves, so I know about doctor ambivalence.
Can anyone give me any idea of what to expect as to the progression of this disease? I'm 49.