can anyone help please?

6 years ago i contracted shingles from a work colleague. 3 months after that i had an accident at work which injured me to the extent i couldnt continue with my job. Add to that my employer ( the nhs) made my life a misery and gave em no support.

two years later, i was told i was to lose my job, a job id studied hard for at university and worked in for 20 years.

i woke up one morning and couldnt move a muscle. this was right out of the blue. i had been suffering from lower back pain ever since the accident, but otherwise i was quite able to move around. it took 6 hours before i could move. it was easter day, so i waited until two days later before i contacted my gp.

after 6 months of aching, vomiiting, extreme constipation, i was diagnosed with polymyalgia ( i was 48). six months later i saw a rheumatologist who advised i had hypermobility syndrome and fibromyalgia.

since then i have suffered from , muscle stiffness, vommiting, severe migranes, bowel mobility issues, urine retention, unable to concerntrate, unable to find the right words in conversation, forgetting what simple things are called, forgetting what to do half way through doing it, sweats but with cold extremities, crashing after small stresses or mobility, ie shopping, i get home and fall onto the sofa, in my coat etc, and sleep for up to 6 hours. in the evening, my eyes are blurred, my sleep is disturbed, i cannot get comfortable.my throat is hoarse.including my hips. In bed all of my joints hurt,

it takes me ages to do anything, i cant do fiddely things, like do up buttons. i forget what im supposed to do next quite often.

im sure i have been misdiagnosed and that i may have ME. my symptoms seem to be getting worse.

can anyone help me, please?

3 Replies

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  • Symptoms for fibromyalgia and ME can be very similar. But sadly there is little in the way of treatment for either condition.

    Maybe ask to be referred to a specialist ME/CFS clinic to see what they think?

    At least then you might get some more answers or clarity.

  • unable to concerntrate, unable to find the right words in conversation, forgetting what simple things are called, forgetting what to do half way through doing it, sweats but with cold extremities, crashing after small stresses or mobility, ie shopping, i get home and fall onto the sofa, in my coat etc, and sleep for up to 6 hours

    I have these same problems but I suffer from Chronic fatigue syndrome

    I sleep for 12hrs but am still tired

    I am trying to improve my diet by adding more greens and seeds and fruits

    Also I drink a little colloidal silver water to kill virus or bad bacteria

    I make it myself,you can youtube it or google it if you are curious.

    But I am just coping.

    They are a lot of serious sickness that we man face, is is really frightening.

  • What part of the UK do you live in? There are some clinics you can be referred to in some places but if you are in Wales, there are no clinics although if you live on the borders you might be able to be referred to an English clinic if you are lucky. I thing that people in North Wales get referred to Liverpool and in Cardiff there is a rumbling of something being set up. There is MESiG and WAMES in Wales who you can contact for assistance and information.

    All the best,

    M

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