Anyone else have no visits, support or help from people ?

[Lainey40]

[hannalaura]

hi lainey, I'm sorry you are feeling left alone I do know what you mean. My friends have gradually dropped like flies, and it is very sad. I do have support from my gp and the psychiatric department, but that is because I was feeling so lost and desperate I was feeling like ending it all. It is very hard, people do not understand how we feel. yesterday I was almost normal and felt like I could do anything, but today I got out of bed late afternoon and my legs are itching like mad and have head pains. We can never make appointments can we? I need to go to the dentist but I have no idea how I will be on that day.

True friends are hard to find, please message me whenever you want to at least there are people on this forum in the same boat. x

[annebrewitt]

Hi Lainey,

At first my daughter and I were getting regular visits from an Occupational Therapist every month. Then as more people were being diagnosed with Me/Chronic Fatigue, the visits went to every three months, then six months. Then my OT had a baby and since being on maternity leave, we have not had a visit for nearly a year. Although there is not much they can really do, other than take notes and give the same advise each time, to pace yourself.

As regards to family, I am very fortunate my 3 sons help, but there is only so much even they can do, as they are in full time jobs working long hours. As regards to friends, I have had some help from friends, but not for a long time now and I do get very low, as I love a nice clean tidy house, but some days my daughter and I just do not have the strength to do anything. On the days I rest and get a little more strength, then I try to catch up, but it is a nightmare. I want to spring clean my house at present, but just can't.

This is where I wish we had help, even if it was only once a week or once a month, if we had someone that could come in even if we had to pay to help keep things a float as they say. Years ago they used to have home helps. I remember my nan had one as she was over 60. This was free of charge. However now, no one seems to care and even if you wanted help, you would have to pay about ten pounds an hour. It may have even gone up, as I had a friend help me for a few weeks who was a cleaner and she charged me £20 for two hours. Of course people are always quick to remind the ME sufferer that there are people far worse off than us, which is true, but that does not help on the days when we feel so weak and totally helpless.