Newbie: Hi I have type 1 diabetes... - Diabetes Research...

Diabetes Research & Wellness Foundation
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Lolabuny1
Lolabuny1
24 Replies

Hi I have type 1 diabetes anyone for a chat?

24 Replies
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Activity2004
Activity2004Administrator

Hi and good morning. Welcome to the group. Feel free to continue posting and commenting anytime. Also, check out the polls and events for ideas and information.

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MEJones

Hi, is there something in particular you'd like to chat about? I've been type1 for 23 years, so might be able to help. :)

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Lolabuny1
Lolabuny1
in reply to MEJones

Hi no not really just general things. I also have it for 20 odd years. Although I had it before then. Doctors said there was nothing wrong with me. Then I got really ill and that's when they found it.How do you manage yours?

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MEJones
MEJones
in reply to Lolabuny1

Sorry to hear you were misdiagnosed to start with, it happens so often and is incredibly dangerous. I manage mine with the basal/bolus regime, but pens not pump, In the UK i don't qualify for a pump, so do it the old fashioned way. I am a constant tester and check my bloods way more often than I should but I find it makes me feel less anxious.

I had the dexcom g6 for a few months but it was self funded and the sensors kept malfunctioning so I decided to go back to the traditional meters.

I am on the waiting list for a freestyle libre on the NHS and should be hearing back later this month, not holding out too much hope that it will change things, but i'm willing to try anything.

How do you manage yours?

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Lolabuny1
Lolabuny1
in reply to MEJones

Hi just novorapid daytime and I'm on the new tresiba at nighttime used to be Lantus. I would like to try a sensor. I haven't asked about them. Yes I too constantly test my blood sugar. I am in the UK.

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MEJones
MEJones
in reply to Lolabuny1

I would 100% recommend trying a sensor as for some people they really work and can be life changing. The dexcom is expensive but if you can afford it then it's worth it, as it's the best on the market.

Check with your consultant next time you see them, as the Libre roll out is happening much faster now and loads of counties can now access to them on the NHS, I got put forward because of my multiple testing, and you sound like you're the same so you'd be the perfect person to be signed up.

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Lolabuny1
Lolabuny1
in reply to MEJones

Hi yes I will I saw her last month and forgot to ask? Do you know if we are allowed to have protein shakes?

Thanks

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Lolabuny1
Lolabuny1
in reply to MEJones

Do you live in South of England?

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MEJones
MEJones
in reply to Lolabuny1

I'm not 100% on the protein shakes but from my own experience and what i've read from diabetes uk there is nothing to suggest you shouldn't have them if you're an adult. I ate protein bars for a while as my muscles were severely depleted but i stopped as I didn't actually like them and found more natural sources from food. As long as you keep an eye on the carbs in the protein shakes and the sugar then you should be fine with them. I guess its like everything with diabetes, you just have to try it and hope for the best until you figure out what works for you. Are you trying to build muscle or do you feel like you just need more protein in general?

I am in the south west of England.

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Activity2004
Activity2004Administrator
in reply to MEJones

Protein has helped me with the numbers to be even through the day and evening hours. I do a low carb high protein diet. I have a 30 gram protein bar before bedtime every night along with a Greek yogurt depending on what the numbers are at the time.

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Lolabuny1

Hi yes I'm try the lchf diet. But I don't keep to it🤔

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Lolabuny1
Lolabuny1
in reply to MEJones

Oh the west country? Well to lose weight and to build muscle.

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MEJones
MEJones
in reply to Lolabuny1

Yep, the West Country. I found the best thing for me personally was not to drop carbs as my body needed them after sports, and the best thing I ever did was to start pilates as it built up my muscles, toned my body and made me 100 times more flexible. It takes a while to get used to pilates but the results are so much more than i could have ever expected, I also do 2 days of pure cardio in the gym for heart health. If you don't have access to the gym or find it daunting, there are some great gentle videos on youtube that can help with weight loss and don't feel so overwhelming. It feels like diabetes goes completely against sports and loosing weight as we have to contend with hypo's and sometimes being forced to eat when we don't want to, but it can be done with a little bit more planning. I went from 16 stone to 8 and have maintained it now for 5/6 years. You'll also find that the more exercise you do the more sensitive you'll become to insulin so you'll probably find you need a lot less.

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Lolabuny1
Lolabuny1
in reply to MEJones

Thank you for the info👌

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Activity2004
Activity2004Administrator
in reply to Lolabuny1

A CGM is good for those who want tighter control of their blood sugars and know if they are dropping (if they don’t feel it). I have been using a CGM for almost 4 years now.

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HOBIEONE

Welcome Lolabunny. Its a pain at times but really good luck. I have not let it stop me in anyway. Been to Asia on my Motorbike, Russian boarder, Italy twice , Ireland twice, & have two growing up kids. T1 since England won the world cup. From a very positive T1.

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Lolabuny1
Lolabuny1
in reply to HOBIEONE

Hi yes it's good to be positive and I also have fibromyalgia as well. So find it harder. Have been diabetic for 23 years.

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HOBIEONE
HOBIEONE
in reply to Lolabuny1

Sorry to hear about the fibro M. I know how much it hurts my mate. He is hard as nails & no softie. Well done for your 28yrs of T1. I have been T1 for more than 52yrs, to say its a pain in the arse is a joke. Keep at it & good luck.

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Lolabuny1

Hi yes it's good to be positive I also have fibromyalgia as well. So find it harder. Have been diabetic for 23 years.

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HOBIEONE
HOBIEONE
in reply to Lolabuny1

A very good friend of mine has fibro m. He was in the Army & also a brick-layer. A T2 now off his meds for T2. Good luck

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Lolabuny1
Lolabuny1
in reply to HOBIEONE

How did he do that?

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HOBIEONE
HOBIEONE
in reply to Lolabuny1

He has a soldiers head on his shoulders. If you tell him to Not eat a certain food he behaves. Stopped his drink & walks the legs off his poor dog. Puts his shopping in a rucksack & walks miles to get his food in. Fit X - squadie

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Lolabuny1
Lolabuny1
in reply to HOBIEONE

Lol good on him😀

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Lolabuny1

How did he do that?

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