I am on this board to get help for my brother and advice on how to deal with an increasing series of health problems.
RG, my brother has been diabetes T2 for more than 9 years. Whilst this has in the last 3 years been managed well, the situation is as follows
He has a mental capacity issue, that reduces his ability to absorb issues such as medication instructions, personal hygiene, dieting, and dealing with life. I help with all of these via various routes. He has most of the side effects of diabetes, has worrying levels of hypertension, has Charcot Knees and feet. All of these have now reduced his mobility, so he can only go out in a wheelchair with direct assistance.
His recent bloods show an eGFR of 16 creatinine 327 urea 36.1. These results have worsened quickly, over the last 6 months.
The renal consultant is now advising that RG is at a CKD of 4-5 and dialysis is looking to be very likely. I have discovered that most of the hospitals in our area do not have pre-renal unit counsellors. We need to have detailed review of treatment options related to the ongoing quality of life and well being. I live 40 miles away from my brother and I am his only living relative. RG is currently in sheltered housing, classed as independent living. I have spoken to Kidney UK and they advise that finding this kind of support can be very difficult. RG local GP has no support to offer.
In my view, the priority is to get talking with someone who has knowledge of this sort of point in my brother's life