I,m new here

[doreencook]

Hi everyone. I have been on dialysis for two years I do P D during the night everynight for 8 hours. The machine is ok and I am dealing with it ok.The main reasons that I would like your comments on are does anyone feel isolated doing P D at home I don't get a lot of feedback after I give my monthly bloods. I was told by the dietician that I am not getting a good dialysis but what does that mean. Also can I ask any one how long they had to wait for a transplant if they had developed cancer whilst on the list. I am on the list for almost 3 years but took breast cancer 18 mths ago, hopefully it has gone but when will I be considered for a transplant again

[NelsonN79]

I use the cycler (machine) for 10 hours every night. It does limit me from doing many things but the next day I’m free to do whatever I please without worrying about exchanging. I also like it because I go out empty without having to feel the discomfort of being full. My PD nurse usually does an adequacy test to see if the machine is cleaning me up. So it really depends what solution strength and how much and how long can give the results they want. My wait time I’m told for a donor is 7-10 years. Ugh... I guess I’ll get use to this lifestyle.

[jaykay777]

Have you received treatment or surgery for your breast cancer? I hope you will go beyond "hopefully it is gone," and have surgery or other treatment so you will know it is gone when your doctor tells you so.

[doreencook in reply to jaykay777]

Thanks for taking the time to reply to me yes I have had surgery and radiotherapy. Apparently you cant have a transplant within 5 years post op can anyone tell me if this is set in stone or is it flexable

[TamekaS]

It can feel like that some time, but I did it when I was going to bed so I wouldn't really have that feeling. I had my snacks, TV and remote and occasionally family. It gets better.