Phosphate intake

[welcome]

Hi,

I was advised to avoid dairy products, chocolates, bananas and the dietician gave me a list of what I can eat/avoid. It was emphasised to me that I should stick to portions advised, however, there was no limit of how many times I can eat. I am sure your dietician would be helpful and she would check your results and advise you accordingly.

[evamay]

I'm sad about bananas - I usually have one a day on my muesli... and chocolate is going to be a real hardship.

[Nicolala in reply to evamay]

Sorry to be a killjoy - but you need to check the muesli too. X

[TamekaS in reply to Nicolala]

I like all hot cereal pretty much, so I mix it up for breakfast and take my binders.I have banana twice , maybe 3 times a year. It's hard but what's important to u, what u eating or how long u get to live to eat.

[TamekaS in reply to evamay]

it's not that u can't ever eat these things, just in moderation. Have a couple breakfast options, and always, always remember ur binders.

[fredinspain]

Sign up to Renal Patient View thinkkidneys.nhs.uk/ckd/pat... and you can see your own results from monthly blood results.

There is an explanation of what each one means and what the limits should be. It's quite easy to select the ones you are interested in and put them in a table view which you can export to a file and open with Excel or free Google Docs and print them

A good phosphate binder and dialysis should keep it low enough to have a couple of bananas a week and a small piece of chocolate each day and in my case a morning coffee as I can't stand the taste of tea.

All the best and remember dieticians come on heavy so that you will listen but your bloods are the decider.

[pryderi in reply to fredinspain]

Its very much an individual response. Generally most things in moderation seem to work for me. Making sure your potassium dtays safe is important but on dialysis you can usually get away with some fruit. Keeping phosphates under control will help stop you itching and protect your nones from calcium loss but the binders do a good job.

Like the previous responder watch your bloods they will tell you what works for you.

[jennieck]

You can still have dairy but you have to limit it - we have sheets of info on this.

[Endurance]

Hi All,

Here in the US I'm taking a phosphate binder called Renvella. Tablets are 800 MG. I can pretty much estimate how many I'll need depending on what I'm eating. At minimum I take 2 but usually end up taking 4 with meals. Admittedly, I run into trouble when I consume too much food with phosphorus. The tablets can't make up for the overload. I try not to do this, but sometimes it just happens or I loose track. I'd say that chocolate and bananas fall more into the category of potassium to be careful of, although they do have some phosphorus content. Lab work will determine how you're doing and what your values are, so go by that. Dieticians know a lot and they're just trying to protect us form ending up with too much calcium in our blood and crazy phosphorus levels so we don't loose bone health, have a stoke or a heart attack. Yes, running too high with phosphorus or potassium can cause significant problems. But the lab will will definitely be the ultimate determinant. Nobody can live with chocolate here and there!!!

[fredinspain in reply to Endurance]

I was on Renvella when I lived in Spain and it worked well. When I moved back to UK I was taken off it because of it's cost! They put me on Calcium acetate (Phoslo) which didn't really work and sent my Calcium sky high/ Now I am on Lanthium carbonate chewable tablets which seem to be working OK.

You are right about the Potassium in chocolate and bananas but for most people it is one of the things that is removed satisfactorily with dialysis.

[Endurance]

A long time ago I was on Renagel. I wonder if that would still be available? It worked well as I remember, but has been replaced by Renvella I'm told. Glad that Lanthium carbonate tabs are working alright. Oh, quick correction.....I meant to type that nobody can live withOUT some chocolate here or there!!

[Nicolala in reply to Endurance]

I was taken off renagel. It suited me, but became less effective after a while. It was replaced by Phosex. That didn't suit me at all; I felt sick and bloated all the time. I don't need any binders now as I'm on nocturnal dialysis and it clears phosphate beautifully.

[TamekaS in reply to Endurance]

I use Velphoro and really much rather have it then other I have tried.

[evamay]

Thanks for all your advice - I get to see a dietician in 3 days so have a lot of info from you all to discuss with her!

[TamekaS]

Yes usually if ur numbers are off, she go over what u been eating and some better choices to help get numbers/levels back on track...it doesn't have to be boring.