My Wife Sez All I Ever Talk About Is Park... - Cure Parkinson's
My Wife Sez All I Ever Talk About Is Parkinson's. What's Up Wid Dat?
Joealt, There is nothing wrong with talking about your PD - it is a life changing event - your wife should have compassion for what your future holds - I do not have this disease however a very dear friend of mine does and gets the same crap from the spouce unit. You have a deblitating health issue , and if you need to talk PD 24 hrs a day to understand it , then go for it. It is healthy to talk out your thoughts - I hope for your sake the symptoms lessen - take care
Just tryiing to understand the issues , both physical Issues and social / metal issues facing my friend with PD, because I am commited to stand by her.
please see my comment at the bottom
Your wife is scared and missing her old life and is afraid she has lost her future. Suggest she go to a support group with you. Then assess your self. Is PD the only thing you talk about? If yes then make an effort to talk about books, movies, your friends, her interests and tell her you love her.
You are right about our life being changed. We used to do more. I talk about other things but sometimes I need to talk about PD with her. I tell her that I love her every morning. We're having a few people over on Thanksgiving Day. I plan on monitoring my conversations and will avoid the topic as much as I can [a couple of these folks will be staying for a few days so that'll be interesting].
If youre like most of us,you'll have good days and bad Relish the good experiences learn how to tell someone I'm feeling good As long as you set realistic goals It gets your mind off Parkinson's condition it is a valuable cofidence builder Don't let parkinson take charge of your attitude The healthy ones don't realize how fragile their image and their independence are nor do they realoze the depth and breadth that still glows in the hearts of the afflicted.Adversity does enrich your outlook
my wife said the same basic thing to me just the other day. Face it dude, she's probably more scared than you are, and used to you being the strong/dependable one in the relationship. Be patient. Do your best to romance her, you know - the very stuff that caused her to fall in love with you in the the first place...like "whispering sweet nothings in her ear", especially non PD related sweet nothings!! it might prove quite mutually beneficial. Finally i would recommend that you locate a support group for spouses/caretakers, etc... she might find real value there, too!
what a lot of good sense - i am very conscious of the heavy problems that my darling husband has and i tend to keep my pd to myself and this site - for which i am very grateful indeed - i am badly affected with the sort of pd that has progressed from being stiff and a bit stumbly to having to have almost everything done for me - i use a wheelchair when out and need awalking frame to move around inside the house -my husbabd also does all the cooking too ... i also need to be helped in and out of the shower and to get to the loo esp at night == and all in the space of 19 months - so i really dont want to add to the burden by talking about the aches and pains and minutia of how i feel the whole time - as far as the romace goes - we still have avery close and loving sexy relationship - thank god he loves me no matter how much i am feeling bad - i dont tell him - i also try to get a bit better each day - i am on the neupro patches and building up to a max dose - by yesterday i am happy to say that i was able to walk a little better by lifting my knees as i i walked with my arms resting on my husbands shoulders - a bit like the conga !! he was so thrilled foR me and i felt i was helping him to cope better - i love all of you out there who are suffering but we are not the only ones xxxx
Shasha, you've answered a question I put to you elsewhere on the site.
Have you considered using a treadmill? I find that exercising on a treadmill which has arms to lean on and take my weight, helps to provide physical exercise which I wouldn't otherwise get.
Mine is electric and will move at a wide range of speeds from very slow upwards. If you are very unstable then it might not be practical, but with your husband assisting it might work?
thanks jupiter - we have considered a treadmill and i think if we can afford one, here in france they are very expensive, then i may get one for xmas - i hvae read a lot about the benefits of a treadmill as excersise - so thank you for reiterarting my thoughts- i am also so sorry to hear of you wifes problems - it seems that you and she have all the luck !!
Forgot to say, my wife has her own problems. She has nocturnal epilepsy, which means that she has seizures only at night. They are still debilitating though, and she also has balance problems.
She does the cooking and takes our gorgeous Tibetan Terrier for walks. I do the after meal tidying up in the kitchen and the odd job around the house. However, I find that the day after I do some physical work I am totally shattered.
Fortunately, I can claim Attendance Allowance which pays for a cleaner once a week and a gardener once a month and decorators when needed. Thank goodness for the NHS and Social Services!!!
Talking about having the disease does help "take a load off!" My family has a hard time listening to me also, because my meds are making me appear normal. So I am certain they wonder what I would be fearful of or complaining about!! This website has been a life saver!!
Thank you all for the kind thoughts and advice. PD does become an obsession, and/but I understand that my wife may be frustrated and might need to have her own time. We get along pretty well otherwise.
When I was diagnosed, I sat down with my children with printed materials in front of them that described some of the behaviour they might see. Neither was home when I had the worst "episode", I was glad they were not here, it was scary enough for me!
About six weeks ago, my 16 yr old daughter was here when I a had a stretch of very bad days. She stated that I had talked about how bad it was but never having seen it she did not understand, now she could see what I was talking about.
I know that non of us want loved ones to see us when we are really bad, but it does give them a better understanding and they can learn empathy for others no matter what the disability.
Susie01 - Amen to what you just wrote - they do learn empathy for others with disabilities - and it builds a better person in our children
? about stiffness, I may have hit my peak🥺
I got my wake-up call last night. I fell out of bed 🙁
