Does anyone take vitamin supplements they think is helping with their PD? Would like to have hubby try some but wasn't sure if they worked

[janab]

No vitamins are really successful but it is known that persons with PD are very low on vitamin D and calcium so I take those,plus fish oil plus folic acid plus vitamin C and vitamin E and vitamin B12. The latter is also very important.I also take some turmeric as well. So far I have got all my wits but my mobility is terrible. Does anyone else have any further suggestions?

[Hidden in reply to janab]

Thanks for your response. I would like to add Vitamin E and the liquid fish oil but wasn't sure they would help. My hubby also has PD related dementia so don't want to do anything that would make the dementia worse. I guess if the vitamins are all natural they really shouldn't hurt?

[Donzim in reply to Hidden]

I do not believe that any vitamin could make dementia worse. When one thinks that impaired blood flow contributes to dementia, wouldn't it make sense to improve that through the use of ginkgo , c, e and anything else which might have that effect? You must however check contraindications with prescription drugs. For instance there are a number of supements which lower BP which would not be desired in a patient with low BP. Some supplements work by thinning the blood so not good if one is on blood thinner.

[jillannf6]

i take coq10 (for energy fo rPSP) but nto sure if there is nay benefit

lol Jill

[Annie81963]

I take a multi vitamin and B complex and do believe they are helping.I was going to take just B12 but my neurologist said you get more benefits from all the B's instead of just the one,and I agree with him.Try it and see!

[Donzim in reply to Annie81963]

Yes you must never take just one part of the b complex. Once taking the complex, you can add more b12. It is water soluble and you will just pee out what you don't need.

[hilarypeta]

All those and zinc sulphate for detoxing and magnesium and omega 3 oil for keeping nervous system calm...

4 prunes a day to keep constipation away! And Water for the brain...

[Court in reply to hilarypeta]

I have started taking concentrated prune juice and find it works well and is quite palatable. Still don't drink enough water, though.

[tlongmire in reply to hilarypeta]

How much Magnesium do you take?

Hugs, Terri

[MagicMax]

Two work really well for me: Magnesium reduces muscle pain, and D3 helps keep the brain fog away. Lots of water reduces constipation, and keeps the kidneys working properly.

[PatV]

I took vitamins religiously from age 35 until 70. Now I've stopped, even though my doctor says I must take D. I try but I feel poisoned when I take it. I was diagnosed with PD at 64. But in retrospect had signs of it. I have non-tremor type. Many digestive problems. I''m trying to eat whole foods as most additives and processed foods irritate my ab something awful. But I will try to take B, C, D and magnesium in addition to a diet of LOTS of fruits and veggies, little meat, some dairy and like Court I know I don't drink enough water. Love coffee and cookies!

[shetawk]

Know that you can have your blood levels of D, B12, Calcium, Magnesium and others tested.

I would have Calcium tested before I take it because it's constipating. B vites should be taken as a group because they interact.

Don't forget minerals.

There are so many plans out there that it's hard to choose.

Here's an example of a plan: raysahelian.com/parkinson.html

[superjanet]

We both take Vitamin B, D3 and K2 - B for the brain, D3 because I was tested low for it and guessed we would both be (GP said everybody she had tested this year was low, because of the lack of summer this year!). K2 because I had read about research that showed that fruit flies which could not fly because they had Parkinson's type genes were able to fly again after being given Vitamin K. My husband was freezing very badly earlier in the year, but since starting Vit K he has not frozen at all. A friend's relative also started takiing it, and it has slowed down his deterioration.

Not a supplement, but we have also tried homeopathy, and that has been very successful in restoring mobility lost over the summer when dementia started and we had to reduce and eventually remove the mirapexin he was taking. PD nurse and OT are both amazed at how mobile he is now, compared with when they saw him in August.

[Hidden in reply to superjanet]

Thanks for your answer and I think I will give the D3 and Vit K a shot and see what happens. I am always afraid they will interact with his other medications. His mobility comes and goes but his dementia is really really bad.

[superjanet in reply to Hidden]

Do hope it helps. So sorry to hear that the dementia is really bad - fortunately my husband is reasonably OK most of the time. He is on temporary medication after having a really bad time in July/August this year, and is still waiting to go on to galantamine for the dementia. Do take care.

[Donzim]

Absolutely. We have used ca/mg, amino acids, r lipoic acid, TMG, cdp choline, p5 b6, c, isoquercetin ( to curb histamine response), gaba, samE, melatonin, E, b complex, multiple vit/min formula, glucamannon (helps gut motility), saw palmetto formulation, glutamine ( gut motility), trace minerals, digestive enzymes and proteolytic enzymes, chromium to regulate glucose, lavender oil caps to calm down, probiotics. It is expensive as hell but if you can get established as a health professional, you can order wholesale. Or you can join LEF or order from Vitacost online. Not everyone has everything.

Really good sources: Purecaps, Xymogen, Douglas labs, Integrative Therapeutics (lavender oil and isoquercetin)

[Donzim]

Forgot omega 3 fish oil, D (5000), curcumin, any really good anti oxidants, l-arginine for blood pressure and my all time fave- ashwagandha which hubby cannot take right now as he is on blood thinner and it thins blood. DGL. To coat stomach and aid digestion. Cannot believe janab statement that no vitamins are really successful....maybe writer means that they will not cure PD. it is, however, important to keep all systems built up to avoid the 'anchor effect' - one system goes down and drags the others. PD has been called premature aging and that is not exactly correct but close enough. mitochondria are the little cellular engines that take fuel and convert it to energy, feeding all systems. as we age, the mito cells slow down like everything else and become less efficient in their ability to burn fuel, contributing to oxidation. Hence the taking of ant- oxidants to prevent the crippling results of oxidation which leaves more and more waste (think carbon in a car) than the body can jettison so the waste materials build up and become toxic.

Vita I a and mo reals help maintain the health of bodily systems. Since each person is different genetically, it is helpful to get a Specteacell test to see what one is missing. Folic acid for example might be deficient in one person but another might have plenty and taking it would be pointless or even counter productive.

That being said, there are some things which PDers are USUALLY deficient in, D being one.

In our case, husband needed chromium because he doesn't process.glucose well. He needed Arginine to control BP and many other thing tailored to his needs. Isoquercetin for too rapid histamine response, niacin to control hallucinations and now working on controlling compulsive behavior.

Specteacell is not cheap but better than paying for stuff you GUESS is helpful but isn't .