UTI's. Has anyone suffered with persistent, recurrent bladder infections where the the type of bacteria keeps chnanging as well?

[tlongmire]

If so, what action did you take to get rid of it?

Hug, Terri

[bawford]

UTI's? OH yes on the UTI. Waitig on doctor''s results as I write. 3rd time in 18 months. Orders from dr. Water, water, and water. Antibotics Keep on it. A friend of mine was wiped out sence last October.. My dr at Rush in Chicago, informed me with PD UTIs are serious. So lets drink, rest and I'll let you know what my results are and what my new family doctor does this time. Prayers out to you.

[tlongmire in reply to bawford]

I have been on antibiotics almost continuously since February. I have been on 14 different antibiotics including intermuscular injections and bladder washes. For several months the bacteria was the same but after the injections the type of bacteria has changed 3 times. Tomorrow my doctor is admitting me to the hospital so I can see an infectious disease doctor. It is my understanding that they will probably insert a pic line and give me an array of antibiotics for about 6 weeks (only be in the hospital a day or two, I hope). I am so tired of all these doctor appointments. I PRAY THIS WORKS!

I also started taking Cranberry tablets as they are supposed to keep bacteria from sticking to your bladder similar to how "Plavix" keeps plaque from sticking to your arteries. Clearly, you must have to be free from infection for it to help. LOL!

Hugs, Terri

[tlongmire in reply to bawford]

Has your friend had a UTI since October?

I had never had a bladder infection in my 63 years until February. Sadly, I guess I'm making up for it now.

Hugs, Terri

[rainyat10 in reply to bawford]

yes I use to get about four a year, but since Ive been drinking more water and using estrogen cream its been good

[Sandra65]

i used to suffer almost cnstantly with bladder infections. i now have a permanant catheter inserted it is much much easier. xxx

[tlongmire in reply to Sandra65]

Please message with specifics on this procedure. Thanks.

Hugs, Terri

[JennyR]

I have been there on a consistent basis over the past 3 years and have seen 4 nurse practitioners and finally 2 physicians. The bacterial infection has never shown its face, until my last office visit with a new physician (who happens to be DavId Eschenbach, MD,Fellow

Professor of OB/GYN, general surgery/ Clinic is vaginitis and vulvovaginal disorders at the University of Washington,. whom I gave the first and only urine specimen to. Not one clinition asked for a urine sample prior to that. The test came back with positive white cells in the urinary tract and some yeast cells. I would recommend that you see a specialist who can determine if there is any connection. Good Luck.

[tlongmire in reply to JennyR]

I have been seeing a specialist who has cultured all my urine samples. He gives me the appropriate drug for the bacteria I have at the time but it either doesn't clear it or it comes right back. It had been the same bacteria since it started but in the last 3 weeks it's changed to 3 different bacteria. Waiting to see another specialist tomorrow.

[PatV in reply to JennyR]

Unbelievable ! I give a urine sample almost every time I go to GP because I've had sporadic UTI. Lucky so far.

[tlongmire in reply to PatV]

I hope and pray you have continued good luck.

[jillannf6]

HI TERRI

Sorry about your recurrent utis

i have only started iwth them in the last 2 yhears and now know it is th ePSP

I am seeign an incontinence nurse as i have bowel probs too=- when i gotta go i gotta go for both bladder and bowel

but she said i was having too much fibre/!

the utis i have every 6 months but cranberry juic ena dantibiotics have cleared them up so far

you r really having a bad tiem of it with a const ant uti

plz let us knwo how u ge ton with ur hospital stay

lol JIll

ahugs and xxx

[tlongmire in reply to jillannf6]

I'll will let you know. I'm hopeful it will be a short stay. The specialist I'm seeing is an Infectious Disease Physician. Hopefully, he'll get to the bottom of this problem.

[tlongmire in reply to jillannf6]

Well, I was on IV antibiotics for 3 1/2 days in the hospital. I was sent home with oral antibiotics for a week. Finished the prescription I was sent home with on Thursday. I'm pretty sure it's back today. @@&$$?!?&$@. Can you hear me screaming? I'm so tired of all this SHIT or rather all this PEE. LOL!

[shasha]

my God - terri You are suffering so much my heart bleeds for you - i do so hope that this new specialist dooes truly get to the bottom of the horendous problem

love and HUGE HUGS to you my dear terri

sha xxxx OOOO XXXX

[tlongmire in reply to shasha]

Thanks Sha. Hopefully tomorrow will be the start of better days.

[PatV]

Once my GP would not prescribe for me until I was cultured (NO WAY I COULD GO ANYWHERE) and my neuro prescribed for me over the phone in seconds! Very serious for pwp's.

[tlongmire in reply to PatV]

I know how that goes. Not fun.

[jillannf6]

hi terri

still no better?

i really feel sorry fo ryou and all of us of course who suffer i this way

lol Jilll

and a HUGS and xxxxxx

[tlongmire in reply to jillannf6]

Has your nurse said if there is a reason why PWP's have problems with UTI''s.

[jillannf6]

not reallhy

excetp that with PSP the muscles do not work as they shoudl with either the bladder or bowel

so it si par taof the coniditon

lol Jill

and hugs xxxxx

[Hidden]

Terri, I have struggled also with UTI's, sinus infections, bronchitis, skin rashes, etc...been on way too many antibiotics according to my Primary Care Physician! She has me on a Probiotic! It's called Florijen 3. It's over the counter and you have to ask the pharmacy for it, because it is refrigerated. No prescription is needed! She explained to me that someone in our situations, such as PD, (some that get more infections), and you are on an antibiotic more often, it rids the body of the good antibodies as well as the bad! So we need to keep the good and the only way is taking something like this! Check with your Dr. of course, first! But it certainly can't hurt anything! I can't believe more doctors do not tell their patients with a lot of infections to take this! Hope this helps! It has me! I feel so much better! I also take pre-natal vitamins! Which has all the vitamins women need anyway! Can not take regular adult vitamins. They make me sick! Sure does help your hair and nails! And more, I'm sure! I have been taking the prenatal vitamins for only three weeks! Will let you know how I feel after awhile longer!

Blessings,

Carol

[tlongmire in reply to Hidden]

Carol,

How many and how often do you take Florijen 3? I have ordered some from Walgreens, should be in tomorrow. Thanks.

[tlongmire]

Carol,

Thanks so much! I'll certainly give it a try. I have been on over 12 antibiotic this year, had 4 bladder washes and was hospitalized and given IV antibiotics. It never clears or changes to another bacteria so the antibiotic has to be changed as well. I am currently on an antibiotic but I have decided to take myself off, not working anyway, and try the home remedies listed on the website below along with the Florjen 3 that you suggested. I'm so worried I'm going to get something and won't be able to take anything for it. It's been very stressful and has really worn me down. It's hard to keep your spirits up. I'm so thankful for my husband he truly is a blessing.

What made you decide to take prenatal vitamins?

Hugs and love, Terri

everydayhealth.com/urinary-...

[Hidden in reply to tlongmire]

I take Florajen 3 once a day with food in the a.m.! Needs to be refrigerated too! Antibiotics rid the body of both good bacteria and bad! It can not tell the difference. So that's why you keep getting infections! We have to replace the good bacteria! It will fight off infections. I hope this really helps you! I would like to know! I started the pre-natal vitamins because a friend (that does not have PD) told me her doctor told her that they are so good for women of any age and not just the ones that are pg! Since I can't take regular adult multi-vitamins, I decided to give them a try! We'll see! At least they haven't made me sick yet! What can it hurt? I can't believe the doctor's are not prescribing pro-biotics for patients with a lot of infections! Especially when the antibiotics are not working any more! Let me know how it works for you!

Sorry it took so long to get back to you I had cataract surgery yesterday and had to go back to the surgeon today! I now have 20/20 vision in both eyes for distance, but do need readers for close up!

Take care Terri, and God's best to you!

Blessings,

Carol

[tlongmire in reply to Hidden]

I will let you know, I started the Florjen3 yesterday. I'll be forever grateful to you if something so simple solves the problem. If it does work I think you should let our PD community know that you recommended it to me and it worked (positive thinking).

Glad to hear you had successful eye surgery. Good for you. I just ordered new glasses myself so my sight should improve too.

God's best to you as well.

Love and hugs, Terri