Royal Square Neurological Hospital in London - Cure Parkinson's

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Royal Square Neurological Hospital in London

Yogibear profile image
8 Replies

Hi everyone,

I have been referred to the above hospital due to "wearing off" causing dystonia problems. Has anyone been for treatment? I am hoping for miracles (smiles).

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Yogibear profile image
Yogibear
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8 Replies
alllowercase profile image
alllowercase

Is that part of the UCLH in Queen's Square? (University College London Hospitals) If so, that is where I go every 6 months. To check, is your consultant Mr Jarman?

I find them excellent.

Adrian

Yogibear profile image
Yogibear

Thank you. My Consultant will hopefully be Professor Lees.

Hikoi profile image
Hikoi in reply toYogibear

He is a world leader. Probably the best known neuro in the uk.

Hikoi profile image
Hikoi

Yogibear.

I believe it is a worldclass unit with some internationally recognised leading staff. Also a very good neurosurgery unit. Perhaps the best unit in the country but there are many good neuro units. Hope it goes well for you.

Yogibear profile image
Yogibear

thank you everyone. Adrian yes it is UCLH and your Dr Jarman is listed with Prof. Lees. I am hoping they will come up with something good.

Yogibear profile image
Yogibear

Do you reckon I should let my meds wear off for my consultation so they will see firsthand what I am talking about. I often feel if have a consultation fully medicated it's hard to be heard. Any tips?

srarndt profile image
srarndt

I would suggest trying to communicate with the doctors b4 showing up non medicated...they might need you on your meds or they might need you off of them for a prescribed length of time, etc.

Steve (Bisbee, AZ)

PS: DBS manages my dystonia symptoms very effectively

.

Yogibear profile image
Yogibear

Srandt what does it feel like daily with DBS?

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