Seeking the best resources for people wit... - Cure Parkinson's

Cure Parkinson's

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Seeking the best resources for people with Parkinson's - can you help?

CPT_Helen profile image
CPT_HelenPartner
5 Replies

We are looking for the very best resources for people with Parkinson's from all around the world. These resources could be advice leaflets for the newly diagnosed, or about a specific medication, or about the benefits of certain activities or routines.

If you have examples of excellent literature or online resources, do please let me know as we would very much like to build a library of literature that you recommend and have found helpful, and store this at ParkinsonsMovement.com.

We would be so grateful for your help.

Many thanks

Helen

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CPT_Helen
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lesleyd profile image
lesleyd

In response to this comment. Last autumn while researching information about symptoms and tips after I was diagnosed with PD I found a series of videos on an american site showing a charismatic physiotherapist / movement expert ( not PD expert) giving talks / seminars to PD patients and carers on many aspects of movement and other PD problems and ways to improve the quality of life of patients. Unfortunately I have lost the link and have been searching again for 2 months but to no avail. Perhaps this resource will be helpful for me. thanks

lesley (newcastle upon tyne)

CPT_Helen profile image
CPT_HelenPartner

Brilliant - will check with PwPs stateside to see if they can give us a lead. These are exactly the tings we need to track down. Thanks so much for the lead

FifteenyearsPD profile image
FifteenyearsPD

EVERYTHING YOU NEED TO KNOW ABOUT PARKINSON?’S DISEASE

THE TOP 100 QUESTIONS ABOUT PARKINSON?’?’S DISEASE

By Lianna Marie

Copyright © 2009 Lianna Marie All rights reserved.

No part of this publication may be reproduced or transmitted in any form or by any means, mechanical or electronic, including photocopying and recording, or by any information storage and retrieval system, without permission in writing from the publisher.

Excellent resource

Pete-1 profile image
Pete-1

If enquiring into some aspect of PD I often go back to the Wikipedia entry on PD.

Hikoi profile image
Hikoi

I find the PUK booklet on drug treatment in Parkinsons invaluable. It has been revised recently and i think lost some good info in the process. I think they left out antdepressant tx amongst other info. Prefer. Earlier version.

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