I won't wait for stuff to happen at other peoples pace, why? because they don't have PD and therefore lack my sense of doing the things I want to at an impatient mad pace and often 'right now', faced with an uncertain future. I don't mull stuff over too much (although PD has a nasty way of making you over think and then tying you in knots) I just make a decision in the best knowledge that I have. I take action to sort stuff out quickly I cannot have it hanging over me, I do things at a pace that seems careless but actually its being careful and watching out for myself. Selfish? well a bit but then those close to me don't stir from a 2 hour sleep wet faced from drooling, they don't have the humiliation of loosing their bladder control in the middle of a gig, they don't spend the night curled up with leg pains, nor do they take an hour to get dressed in the chaos of looking for things. No illness is thankfully understood but not shared. I am not saying they have it easy just perhaps easier. So I shall plough ahead being bold, creating stuff to suit me. It actually makes me in my opinion a better nicer person.
No matter how bad I feel sometimes, I always think to myself someone out there is suffering more than me, it makes it all seem of so little importance.
Very well said. No reason to feel selfish about tkaing care of yourself. I think people will see you as a strong, determined perspn and would hold you in high regard. We will feel better if we take care of ourselves as long as we can. Be proacitve and find our role in life wiith this new stage we have entered. THere is a place for us, and GOd knows there is a lot to do out there. My best wishes to you.
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