What would you like your neuro to ask you... - Cure Parkinson's
What would you like your neuro to ask you, but he/she never has ?
Answering my own question! I have been asked about all sorts of things and told a few more, but there never seems to be a space for bradykinesia or bradyphrenia, both of which I find difficult to deal with.
After 8 years, 4 doctors and appointments that are now annual, I'm not expecting to get through anything but immediate concerns, but these two are a constant for me. I have no complaints, just thought that given the broad strokes that PD paints across our lives, that there must be things that others wish they could raise and never quite manage to......
In my case it says more about me than my doctor - bradyphrenia is precisely one of the reasons I am not the one to raise it - I either lose the words or the bit of paper, sometimes both 
So. can we finally say the treatment has worked and you don't have Parkinson's anymore?
David, the treatment works, for the most part.... it isn't a cure
I was looking forward to the final treatment, the curative treatment, the big
fix.That's the question I look forward to hearing.
I believe that the new initiative by the Fox foundation is to push new treatments through the pipeline. Their trial finder is looking for many people to volunteer, and will spread a wide net...... one way to move things forward.
Thanks for your thoughts about the Fox Finder. I think this is a huge step forward as it is one more barrier that is being tackled and tackled in such a positive way. For those based this side of the pond we need to hang on but it will come this way. One of the things that slows research is recruiting people to take part, and people can't take part if they don't know what is going on where. Fox Trial Finder will deliver this - not only trials that are happening but also an outlne of the selection criteria so it is easy to see if it will be relevant or not.
By taking on each barrier, we will get closer and closer to a cure.
Why are you here?
