I agree. This is not the life we asked for or expected. You cope brilliantly, and are an example to all of us. But when all is said and done it certainly is no fun. Hey, I made a rhyme!!
I don't know Michael. All I know is that I am surrounded by confusion. I have loved ones who want to pretend I am not ill, others who think I will one day be "all better" and yet others who just don't talk about it at all! I have a new Neurologist and a whole team of therapists and nurses who want to help me in any way they can, any way but giving me pain meds and muscle relaxers. I hate breaking in new doctors and I am tired, oh so very tired, of fighting for quality in my life and not worrying so much about the quantity.
It takes courage to speak out the way you do. Every day is a repeat of the previous. I wish that we all could wake up from this crazy dream. Be well my friends.
I love how you said that. Everyday for almost 2 years I have thought exactly that. I had just gone back to school and invested in an MBA, and then I got the PD diagnosis. So, now I make student loan payments for knowledge I have already forgotten. I can't even walk every day let alone keep it together enough to work. Since my symptoms wax and wane, some people claim I am faking it. I would gladly trade them my "fake PD" any day. I'm exhausted. But I did find a athlete drink mix, Inner Power by Life Extension, that alleviates my perpetual body pain. So, there's that. But I am quite pissed-off about the state of my life now. It's like I've been scammed and lost everything in the deal. I have little choice now but to move the bar for myself. I won't be anything I aiming for before PD. I'l just have to be something else. ....... Thinking.
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