Sister, thank you. But there are some things we must do. We must be brave for others, when we can. I don't know why right now because you took my breath away, but I do know it. Love.
Yes, there are some people who need to see only our positive, fighting side but I could not go on if I did not have someone with who I can share my fears and my doubts, someone who can read these words and understand how unbelievably vulnerable I am and be there for me when I stumble and fall. Someone who loves unconditionally!
Thank you...I have found living for today and not dwelling on the future has given me a much better today.
The book you want to read is titled Life In The Balance, by Dr Thomas Graboys. Dr Graboys was a prominent Boston cardiologist who was diagnosed with Parkinson's Disease and had to give up his practice. He was overcome with worry that his condition would cause his friends and family to abandon him. What I found interesting about the book was, no matter who you are or what you do, we all share the same feelings about PD.
Life in the Balance: A Physician's Memoir of Life, Love, and Loss with Parkinson's Disease and Dementia by Thomas B. Graboys is not available on Kindle (at least not in USA). It can be ordered in hardcover or paperback through Amazon.com. However, if you are like me I don't really read much if it's not on the Kindle because it is difficult to turn pages or go through papers, etc.
Dear joe: I couldn't finish tDr. Graboys' book. I got to the part where he stated " when I lose control of my bowels" I will end it and couldn't continue. It is very well written and resonated too strongly for me. I wrote to him and he responded very nicely the first few times but has not replied to me since. That was about 18 months ago. I hope he is well, I believe that he had Lewy's also...?
I live for the day, taking one day at a time. I don't think about the future because whoever we are and whatever our problems there are so many unexpected things that can happen. No one knows why we have this terrible disease, but at least this site gives us a place where we can share our feelings with others who understand. We can only pray, and who knows, a cure may be just round the corner. Try to stay strong and always FIGHT. My thoughts and prayers are with you. Do not let PD defeat you. We are all there for each other.
Court, every day is a new day, and each day brings forth some understanding of what is needed to continue on this fight. Some days I feel strong and optimistic and other days the shadows are so close, so close, with promises of tranquility and peace that they seem to mesmerize...
Living from hour to hour can be hard enough, never mind from day to day. It is not easy to count our blessings, because we can't see any. but if we look hard enough I believe they are there. Some days it is a beautiful sunrise, a flight of geese, a giggle from one of my grandchildren - these small things give me the strength to go on and live to FIGHT another day. Not easy I know. But we have to have faith and hope.
Hope you have a better day today. We, your friends, are always there for you. Never forget that.
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A DUTY TO TELL
