I would be interested in hearing from people whose husbands/partners do not want to know that their other half has Parkinsons and their way of dealing with it is to ignore it as far as it is possible.
My husband will help if asked but otherwise tends to ignore the situation. Otherwise he is great.
hi sue
yes the p;roblem is i think common iwth men who donot like seeing thei r [partners suffer - pain is not somehtign they deal with in others.
i am tendin to fall outsidie now once a day and peopel are great at wantign to ge t me up and to ensure that i am ok
My partner admitted htat he finds it embjarassing as he has neve rexperiienced it b4
But nether have I anda as i have remarked b4i can never have a moment free of this problem even getting 2 thetoilet in the night si diffficiult and ido sue a commode
HOWEEVR
the move is happenign and the work is being done i n the aparatmetn below to make it more habitable for me
so we shall have another virtual party soon!
Hoping for nbetter weaher as well
lolJILL
Perhaps you need to include your family, when things are difficult tell them,its this magic window that meds give ,puts you in two worlds sometimes able sometimes not,family dont always see it that way if you did it yesterday why not today,its your call I think
How do you include people who do not want to be included? You cannot force anyone to be what they are not. My husband is wonderful in other ways, he is just not able to come to terms with my Parkinsons. But this does not, in my eyes at least, make him wrong.
I don't see what more I can do and it certainly is not my call. Everyone handles things in their own way and he feels, quite rightly, I think, that it is better for us to continue as 'normally' as possible for as long as we can.
I too feel that my husband is in denial about what I am dealing with. I have asked him to read books about PD so he has some idea of what is to come but he has not done so. I have also told him that I would very much like to move closer to our children so that we can spend more time with them while I am still able to enjoy it. He will not even discuss it. I do not feel like I can talk to him about it openly and that makes it very lonely at times. That is why finding this site has been SO good for me! Reading all of your posts makes me feel like I am not so alone in this.
This is exactly the response I get from my husband and I quite understand your comment about feeling lonely. I don't think there is a way to make him change his way of coping - he also will not read any information on the subject or even read letters posted on this site.
I am just so glad that we have each other because in the end the only person who understands is another person with Parkinsons
Sue.
Another question about how to aquire a Que 1
The science of Parkinsons. Easy to understand information about pd provided by scientists.
Have you had success with B1?
Has anyone taking PS128 probiotic found a way to maintain it by food (prebiotic) so no need to keep taking the probiotic?
i would like to know more about the micro therapy.
