Hello everyone, my neurologist is surprised that I have a problem with stairs when I go up. It happens to me in the morning when the dose is not yet in the right mode, so my step returns. At that moment, I hold on to the railing with my hand, so maybe the cause is the interrupted communication of hand-foot neurons or?!? Is there any help? The neurologist introduced Amantadine only in the morning. Will that help?
Thanks and all the best, Margot59.
hi I have the same problem with stairs now and if you can recommend any tips for it please share them with me kind regards stag
It helps when I don't hold onto the railing. But I have to consciously tilt my spine and monitor the length of my steps. Sometimes I succeed, sometimes I don't. It's not terrible for now, I take a step back, then move forward again. In the morning before the first dose, I have weakness in my legs.
Hi thanks for the update I have the same problem with my legs weakness and I suffer really badly from burning 🔥 as well I was hoping to get the focused ultrasound done but finding it hard to get it done so let’s hope that this new AI there are talking about comes soon kind regards stag
it will only get worse. Consider moving into ranch style home or a stair lift
doesn’t sound like enough CL to me
To se uglavnom dešava na prvoj dozi😕
??
This usually happens on the first dose😕
Margot, zbunili ste ljude 😀
My husband tried physical therapy for people with PD. Practiced going up and down stairs. However, he did well when at a facility with other people and a therapist. At home he did what he learned for about a week and went back to having difficulty with stairs.
I would walk directly behind him, both of us holding onto the railings. He continued to get worse going up the stairs, his knees buckling and the front of my body had to be directly against him - kind of pushing us both up the stairs! Not safe. Not safe for either of us.
We invested in an outdoor chair lift so we could stay in our home which is a one-story home - with 5 steps to get onto porch.
Best of luck to you.
Can you briefly tell me what these stair exercises are? Maybe to strengthen your legs? My husband also walks behind me and supports me 🫤
Margot59, your profile doesn't show if you have PD or not. For PD you are basically retraining your brain on how to go up stairs. Repetition.
The physical therapist does a few tests to see if your legs are strong. Do some stretches, sit in a chair with arms then get up and down several times. Next, the PT will have you go up a set of stairs and provide cues if necessary.
Hubby can walk down stairs just fine. Walking up is hard, his knees buckle then he may tip backwards. Scary. We either had to move from our home or get a chair lift.
**my new friend is Copilot. Here is some information from Copilot. **
--------------------------------------------
FROM COPILOT: Here are some leg-strengthening exercises specifically for people with Parkinson's disease:
Sit-to-Stand: This simple exercise helps strengthen the quadriceps and improves balance. Start from a seated position in a sturdy chair and stand up, then sit back down slowly. Repeat several times.
Heel Raises: Stand with your feet shoulder-width apart and slowly lift your heels off the ground, balancing on your toes. Hold for a few seconds and then lower your heels back down. This exercise strengthens the calves.
Seated Leg Lifts: Sit on a chair with your back straight. Extend one leg out straight and hold for a few seconds, then lower it back down. Repeat with the other leg. This exercise helps strengthen the quadriceps.
Standing Marches: Stand with your feet hip-width apart and lift one knee to your chest, then lower it and lift the other knee. This exercise works the hip flexors and helps improve balance.
Side Leg Raises: Stand next to a wall or chair for support. Lift one leg out to the side, keeping it straight, then lower it back down. Repeat on the other side. This exercise strengthens the hip abductors.
Step-Ups: Use a step or platform and step up with one foot, then bring the other foot up to meet it. Step back down one foot at a time. This exercise targets the legs and glutes.
Remember to start with a few repetitions and gradually increase as you build strength. It's important to maintain proper form and avoid overexertion. Consulting with a physical therapist who specializes in Parkinson's disease can provide personalized guidance and ensure exercises are done safely and effectively. ---------------------------
END OF COPILOT.
I too have stairs, inside and many outside as well. Have to be very careful, with balance and curling toes.
You definitely have to be careful. Every day those stairs are seen as a challenge. But I can't get an a-ha moment. For now, I know how to lower my spine and avoid the railing and not immediately condemn myself to failure. I'm not today, I'll be tomorrow 💪🏻💪🏻💪🏻
First as no two PD people are alike, please understand my opinion is that about my wife’s PD. She is 70, diagnosed in 2012, and takes fast acting CDLD, extended release CDLD, Entacapone, Amantadine, and Primapwxole. She also takes sleep aids, anti-depressants, digestive supplements and several vitamins known to help with PD. My point is that it would be hard to advise you as most folks with PD are on a cocktail of drugs and supplements. My advice would be to try to exercise daily, eat well, get good rest, track your symptoms, see your neurologist 3-4 times a year, follow his advice and take your meds always when possible on schedule. Good luck !!
I am 84 diagnosed 5 yrs ago, I only take Sinamet and Rytary. neither are very effective. I have a gym in my home,try to exercise daily, may only ride bike but have a lot of outdoor maintenance. I refuse to get caught in the "circle of drugs". From what I've learned from many others, more drugs don't really help that much. Bottom line PD is a monster. It does what it does. God help all of us to cope better.
Meds to take with Carbo/Leva
Half Sinemet CR
Just diagnosed
Is PD better or worse with medications?
