[Dear all I have received some feedback that I am”blogging” and clogging up the channel. I am open and honest and if people feel that I will drop. So please tell me and I will be ok. I am sorry for offending someone or breaking any rules.-]
'Pumped' literally and figuratively - Cure Parkinson's
'Pumped' literally and figuratively
Please excuse my frankness but you give the impression that you're piggy-back blogging on this forum.
I apologize and if people feel this I will stop. Honestly I have no agenda other than to share thoughts on Parkinson’s. But I am ok stopping if I am doing something wrong. Truly.
it is fair to raise it and i truly don't want to give that impression but clearly it is your impression and i respect that. if others feel that way i will immediately stop. i don't want to get myself banned or kicked off as this forum is important to my learning. so truly am open
You won't get kicked off or banned. Everybody should feel welcome to post as much as they want or feel the need to. We are all, most of us at least, in a bad situation. We should not expect 100% reasonableness or rationality. If you have something you want to share, then share it. Even if it benefits nobody but yourself, still share it (but I know you are benefiting others too).
I am loving reading your blogs, thank you.
keep posting!
Please keep posting!
Don't worry blazyb
We have had a few posters who have posted their progress every day in a new post. Go figure!😜
I enjoy reading your posts, thought provoking and helpful to me - also with YOPD.
I think many of your blogs should be direct posts here, so no, I do not have a problem with the amount or way you post. Not too long ago there was a guy who’s doctor told him he did not have PD, but he insisted he did, and he posted often multiple times a day, and as far as I am aware no one complained about him.
I think you should keep being you. If somebody does not want to read your post they should scroll past it.
When I joined this forum I got a couple of complaints, but I got even more thanks for posts.
Keep being you.
Partagez vos réflexions. Elles trouveront leurs utilités
of course you should keep posting. I am hoping my daughter will be given the new pro Duodopa pump so I am very interested in how it is working for you.
Hi blazyb. Keep posting Its great to hear someone else’s perspective on there journey. Your openness and honesty is appreciated. Ultimately I hope it helps you 😃👍