pills to pump : My latest blog - big... - Cure Parkinson's

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pills to pump

blazyb profile image
7 Replies

My latest blog - big changes coming as o move from pills to pump hopefully very soon

fightingparkinsonss.com/202...

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blazyb profile image
blazyb
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7 Replies
Jess123dog profile image
Jess123dog

Very intetested in your results :)

BPW1 profile image
BPW1

My neurologist recommended the pump to me yesterday but no one in his practice has used it yet since it is so new so I decided to wait. Has anyone had any experience with it yet?

JeanieBeanie profile image
JeanieBeanie

It really upsets me that my HWP diagnosed 31 years ago hasn't been offered this and we live in the UK where it was developed.

blazyb profile image
blazyb in reply toJeanieBeanie

I am sorry to hear this.

MARC1 profile image
MARC1

Ive been put on the list for a Produodopa pump. My Neurologist estimated they would be starting this towards the end of year but as they haven't started recruiting as yet, which is very frustrating!!but now the roll out may not start until the summer 2025 with no guarantees. I take Madopar 100/25 +50/12.5 @ 8 times a day and CR at night. I'm finding eating meals between medication can effect my on/off times all evening.

blazyb profile image
blazyb in reply toMARC1

Wishing you the best of success

pearlette profile image
pearlette

Offered but I want to put it off until there is more cumulative experience. I remember insulin pump launches and they had far more experience on dosing alogarithms.

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