Nighttime stiffness: Is there a way to... - Cure Parkinson's

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Nighttime stiffness

bullet65 profile image
11 Replies

Is there a way to prevent nighttime stiffness. I am unable to get out of bed unassisted and have to rely on medication 24 hours a day.

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11 Replies
gomelgo profile image
gomelgo

CBD oil before bed?

Bear1927 profile image
Bear1927

I had similiar issues few years ago. Are you under a lot of stress? Two suggestions that will not harm: Magnesium and Keto diet. Lots of magnesium, mainly topical, I suggest to go to the steam room or sauna/sanarium as much as you can, and use a lot of Frankinsence oil, if you can't, do it at home, create steam and inhale it. Always have a glass with bicarbonate of soda or charcoal pill 30 minutes before eating, and before going to bed. Also, you can add glutathione (liposomal or injection) if you under stress. I don't want to upset some people here, but 1 cigar in the morning gives me more boost than madopar and asilect.....

MarionP profile image
MarionP in reply toBear1927

Nicotine is not a bad thing, people do bad things with it.

Bear1927 profile image
Bear1927 in reply toMarionP

"tabacco companies" do...most of cigarette smokers don't realise that there is very little tabacco in what they smoke

JakeMax profile image
JakeMax

I take high dosage omegas high in epa and ha. I also do high intensity functional training. This helps immensely. Also the occasional 10 min yoga session just before bed.

JayPwP profile image
JayPwP in reply toJakeMax

Omega 3 before bed or during the day? Which brand and what dosage please?

JakeMax profile image
JakeMax in reply toJayPwP

2 hrs before bed

Gallowglass profile image
Gallowglass

I have read online that some people take their first CL 30 min before getting out of bdd

BeedieBird profile image
BeedieBird

I keep a small chip (25mg 1/4 of a 100mg carbidopa/Levodopa) by my bed and take it in the evening when I wake up stiff and can't turn. Or when I get up to potty. Neuro said it's low dopamine and just put it under your tongue or take with water on empty stomach. It works great.

Zaporah profile image
Zaporah

I was having a lot of difficulty getting comfortable enough to get to sleep, then waking up to pee in the middle of the night. Because I was so locked up and stiff, either I wouldn't make it, or it would take such an effort that I was wide awake, in pain, and unable to get back to sleep. After trial and error over many months, I take 4mg melatonin, 600mg PEA and 25mg Endep 90 minutes before bed, 100/25mg Madopar hbs (modified release) 30 minutes before bed. I have a waterproof pad on the bed and pull up on me. I have all my meds next to the bed so I can take them 30 minutes before getting up.

Supplements wise, I also take 4000mg omega 3's and 2000mg magnesium. Prayer and meditation before bed works for me too 😊

Most nights now I get to sleep fairly quickly as the PEA and Endep work to alter my brains perception of pain, and I don't bother to get out of bed to pee, so I fall back to sleep easily. I figure the loss of dignity is a fair exchange for 6-7 hours sleep. 😂

I hope you find some solutions to suit you, bullet.

pdpatient profile image
pdpatient

Have you tried Gocovori? You might want to ask your doctor if you can get a one month free trial from Gocovori.com. I have been on the medication which is essentially a specially formulated extended release Amantadine for about 4 months and I am doing well so far.

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