early dyskinesia

[wayoveryonder]

I already have movement disorders after less than two years with an daily input of 3 x 100 mg Levodopa.

Who has the same symptoms at such an early stage and what is your experience?

Have you found out what is helpful?

[MellowYellowcup]

Way…

age?

Movement Disorder ?

Tremors?

Dyskenesia?

Which limb ? L or R

Answer these @ score better answer s

Mellow…

[Grammy80]

I've been on steroids for five years, presently taking 60mg of prednisone daily and weekly injections of Actemra for an autoimmune disease, GCA. Many of the symptoms I was experiencing I kept blaming on the steroids. Then the sun came out one day, and I realized..hey, I'd been here before on this steroid roller coaster, and 'this was new.' My neuro-opthalmologist said he wanted me to see a neurologist. 💥 Boom, PD on 9/23/24.

When I entered her office, I was so shaky that I looked like a bobblehead doll on your dashboard; the head was bobbing, and the left arm and leg were trying to keep up. That day, she prescribed 200 mg of Carbidopa-Levodopa, split morning and evening. Six weeks after my original visit, she intends to increase it. Throughout the day, sometimes they are quieter, sometimes not. From this forum and the people here, I have learned that 'off' time, when they are worse, is when the blood level of medicine is lower. I've also heard Vitamin B mentioned a great deal and requested a blood test to check that; it was done today. Many supplements are mentioned, which I'm going to steer clear of until my medication is at a higher level.

I know some of my symptoms are still conflated with all the steroids I'm on, but I want to keep my right eye, having lost sight in the left. I'm hungry for information and intend to eat a simple healthy diet; another chapter.

I've learned there are so many positive and bright folks on here....every one of us unique. I'm in unchartered waters too.💞

[Grammy80]

Check out this post.... Positive Phase 3 Results for First-in-Class Parkinson's Med...interesting article and talks about 'on time and off time.'

I know I am not on an agonist at this time...💞

[Gallowglass]

in 3 years I’ve gone from just walking with an odd gait to constant dizziness, dystonia painful muscle spasms in feet, buttock and shoulder, plus non driving and needing a walker due to many falls . And constant coughing whenever my dopamine is low. I’m 71 and wondering how I’ll make it to 80

[chalnunn]

I have had dyskinesia almost from day one with my treatment for Parkinson’s with levodopa. My right leg would wiggle and wobble. That was seven years ago. My gut slowed down for several reasons and I developed problems with protein activity. the medication absorption and I’ve been on a roller coaster since withtremendous dyskinesia when my meds are higher and I feel better and I feel terrible on low when I am on a low, but I look better.

Had deep brain stimulation put in one month ago. They just turned it on two days ago. Zero dyskinesia now. Wife says it’s for the first time in years she remember holding me and I’m not wiggling. I tried to Amantidine for years with no help. This is the only thing that worked. I’m so early into it I can’t tell with the long-term effects. I am hopeful.

Getting all of this done and not for the faint of heart. You’ve had Parkinson’s for at least four years be deemed a good candidate. I met those criteria and will see