Dyskinesia

[ion_ion]

I'm curios to know if everyone gets dyskinesia after awhile? Or only people who take an increased dose of c/l? Or people who are in an advanced stage? Or is just pure hazard?

Thank you.

[MissRita]

Started showing signs of dyskinesia in February of this year. I was on Mucuna from 2016 to February 2021. I started showing signs of dyskinesia as the Mucuna would wear off I would start to walk around like I’m drunk on the right side LOL I laugh about it because to me it’s just hysterical given the ups and downs of this disease. I was put on levodopa carbidopa in February of this year but I’m finding that it does not work and was put on a prescription of Neupro and I’m still waiting to start taking that. Levodopa carbidopa has made my dyskinesia worse and also I have developed orthostatic hypotension from the levodopa carbidopa as well. Good times! LOL

[Pa-zzi69 in reply to MissRita]

My short experience is that the impact of Levodopa on Dyskinesia is a matter of dosage. Less Levodopa entails less Dyskinesia [but also more tremors].

[MissRita in reply to Pa-zzi69]

I know but in my case it doesn’t matter how much or how little that I take. I get dyskinesia either way. It doesn’t work for the tremor either. Additionally, it makes my other symptoms worse.

[Pa-zzi69 in reply to MissRita]

How much Levodopa do you take and of what type: 25/100 IR or 50/200 CR or ER ?

[MissRita in reply to Pa-zzi69]

25/100 CR. IR didn’t do anything. Didn’t even touch it and I’ve taken three a day and tremors are worse and with dyskinesia, I take six or eight a day tremors get worse I have dyskinesia. On top of that my on times are so incredibly short it’s so frustrating. They just ordered a prescription of Neupro to start and I’m waiting for the approval at this point.

I tried Amantadine as well and that made my tremors go off the chain. My feet jingled and jangled so much and so hard I looked like I was being electrocuted LOL

[gigiwillms in reply to MissRita]

I feel like I'm living a parallel life! I was on mucuna for 2.5 years and am now starting C/L and at 1/2 tab 25/100 3x daily I have dyskinesia and no help for tremor. I added a dose to 4x daily and that only lasted 3 days because I kept having severe anxiety and vomiting. I'm afraid to up my dose and make the dyskinesia worse. My MDS wants to add Amantadine now and I just don't want to do it. The side effects are scary and from my experience, I'm the type of person to get them. Have you found anything to help you yet?

[Cagey84 in reply to gigiwillms]

Amantadine works really well for me, zero side effects

[laglag]

This is a good article describing dyskinesia. I have dyskinesia but it's due to taking too much c/l in a short amount of time (month or two, due to stress). I'm now on 7 per day & Gocovri and I have been able to reduce the amount of dyskinesia. This link is a an advertisement for Gocovri but it's a great explanation of dyskinesia.gocovri.com/about-dyskinesi...

[Isthistheone]

Ion - ion. I developed dyskenesia to such an extreme i didn't want to leave the house. Long term use of c/l may bring on dyskenesia. That's why most Neuros delay c/l. I'm not a Dr just my opinion dyskenesia is an advanced Parkinson's symptom. Read my post on ONGENTYS and Gocovri. I hope my dyskenesia stays in the past. Recognize signs/symptoms of advanced Parkinson's. Ask your Dr. Good luck. Message me if you want.