LDN seems to help

[BoiseD]

I wanted to try LDN for several years but my Dr and my Neurologist wouldn't prescribe it for me. But in August I found Ageless RX (a website) where I can get it prescribed and mailed to my door. So August 23rd I started taking it; titrating up to 4.5 mg.

So I am not quite 2 months in and I want to report its helping so far. Back pain better, right hand dexterity better, less depression and apathy. Recently my brother commented how,good my stride looks.

The tremor has improved some. Even in my off times (I only take Mucuna) I have small windows of no tremors. That wasn't the case a few months ago. I'm hoping the windows get longer, and more improvement comes.

Just wanted to share some positive information. Hope everyone is doing well.

[OKWY]

Thank you for reporting this and hopefully it is helping you to modify the path or even reverse some. I have heard a lot about LDN (low dose naltrexone) years ago doing research for auto-immune disease (RA) for my husband. We never tried it because it was hard to get in the required small dose. But it would make some sense that it could work because some people view Parkinson's also as an auto-immune disease. Please keep us up to date in a few months.

[Lovevirk]

That seems to b wonderful news. Please keep posting further progress.

[gomelgo]

Would be very interested to learn more. I was recommended this at the start of this journey nearly 2 years ago, and tried it but was afraid. Now I don't want to pay 400 bucks just to revisit the same doc. How much did their doctor visit cost? How long did it take to get it, and are you refilling often and through them? How do they do the titration?

[Lizzy9 in reply to gomelgo]

Hello ~ Our naturopathic doctor prescribed LDN for my HwP.

To titrate up he was started on (I think) 1mg, maybe for a month then went up to 4.5 mg. We pay for it out of pocket, runs somewhere around $70-ish for 90 days.

It took about 4 months to see improvements of, but not limited to, improved falling asleep, sleep, cognition. Could be others but I don’t recall since we’ve been on an up/down path for a bit & changing/adding other meds. He’s doing fabulously now!

LDN is definitely worth the cost!!

Blessings~

[gomelgo in reply to Lizzy9]

Going to get it just not sure of the dosage so may try to talk to someone who knows. Any suggestions anyone? Feel free to message privately too.