iRBD Diet

[WhyRBD]

For those of you who have asked what I does the RBD diet consist of, well I have posted on my website

whyrbd.com/research/

I have listed everything I consume on a daily basis. No recipes yet. I am working on doing some videos making the food that has stopped my iRBD events - will advise when I have updated site. Have a question, please ask. I am here to help us find solutions to the many problems we face.

[Bolt_Upright]

Thanks for sharing. That is a pretty comprehensive and well written page.

I will wait for the frittata recipe

[realk]

Thanks for posting....but when I see the list of "dos" and not to "doos" I feel really lost...I simple

[WhyRBD in reply to realk]

Sorry if I do not get the hummor - that train has left the station. Otherwise what I have found is the perfect situation is NO FOOD - PURE WATER - PURE AIR and no disorder. I started from here and continue to experiment. I have no dont's because it is limited by does only. We all suffer from dysbiosis caused by our environment (95%). If you study fasting from text 100+ years ago they address these issues extensively. The major broblem is how hard it is to fast in todays culture of going 100 mph. You have to go back to the days of Upton Sinclare or Herbert Shelton and the book The Science & Fine Art of Fasting. The describe autophage but call it differently. They could see the outcome as people would fast for 7-60 days. The solution is to be found among all this data and definitely not in a pill. So best to just stick to the dos and forget the too doos.

[JayPwP]

Please put the URL in your bio for easy find...

[Rufous2]

I know some RBDers find lectins provoke episodes, and I really wonder what the mechanism is. Is it known, or do you have a theory about it?

I'm among those who are convinced the gut is a crucial element in PD and prodromal PD, caused at least in part by "leaky gut."  Makes sense to me that a compromised endothelium would allow toxins into the bloodstream and eventually the brain, but.... I'm having a hard time wrapping my head around the notion that one ingestion of lectin would cause worsened RBD activity on the same night. Could one dose of lectins really do enough damage to cause worsening so quickly? 

So I've been reading about the effects of histamine in PD, and started wondering if it could be involved in this "acute RBD response," which does seem almost like an allergic reaction. And of course histamine is known to affect sleep. I googled "lectins/histamine, and did get some hits, although none of them seemed too scholarly. 

Anyway, I just thought I'd throw this out there and ask if it's something you've considered.

 

[Bolt_Upright in reply to Rufous2]

This is a good video from Dr Paul Mason explaining how he thinks Lectins cause PD: youtu.be/mjQZCCiV6iA?si=EOA...(Not working as expected?)

[Rufous2 in reply to Bolt_Upright]

Thanks Bolt, look forward to watching it.

[WhyRBD in reply to Bolt_Upright]

Video is good, but misses the science behind how lectins facilitate PD. He is right regarding leaky gut. He is right regarding the vagus nerve. What he missed is the fact that it is not lectins that causes the disorder but misfolded asynuclean proteins. The root cause is the fact that lectins can drive the disorder by moving via prion action proteins up the vagus nerve. Asynuclean proteins can bind to lectins and are carried to the midbrain where they accumulate. I feel the iRBD events are a manifestation of the these proteins actually moving during REM sleep. Studies have shown intensity and frequency relates to phenoconversion. A low to ZERO lectin diet can only be good. I have experienced over time, I have been able to reintroduce some lectins at low levels. Lectins are dose dependent so events are dependent on dosing - keep detailed records to confirm your levels.

[Bolt_Upright in reply to WhyRBD]

Interesting insight. Thanks for sharing.

[Blue-hummingbird]

please share your frittata recipe with us!

[WhyRBD in reply to Blue-hummingbird]

posted on whyrbd.com/research/

[WhyRBD]

I posted this month meal on whyrbd.com/research/ It is a baked Frittata like pie with sweet potato or Cacao ice cream. I will keep working on it. I will work on a video showing how I make it and better access on my website. I have other iterations using same ingredients.

[Blue-hummingbird in reply to WhyRBD]

Thanks so much. I read your ice cream recipe, too, and am wondering how it becomes cold. Do you use frozen bananas?

[WhyRBD in reply to Blue-hummingbird]

With the Ninja Creami you freeze the pint containers the night before. and they are frozen solid - put in machine and you have a great frozen dessert. Well worth the 100-150 dollar investment. I found mine on sale. Just get the cheapest one because you never use all the features of the most current model.

[Blue-hummingbird]

Thanks!