Repost from 5 years ago on on probability of genetic element. Nothing new to say, so I’m reviewing my back catalogue 😂

[jeeves19]

Hi all. I hope that this post finds you all as well as can be expected😊. I don’t write too much these days, not because I’m too bad or anything but I just don’t have as many thoughts as I used to have about the disease. I exercised, juiced, fasted, red light hatted and I still have it unfortunately! Bummer. But I thought that I’d share something that my GP said to me the other day. I was bemoaning the fact that I’d been on Omeprazole for years and that I felt that this drug had probably contributed to my PD by not allowing food to be broken down effectively for distribution. He pointed out that my blood work had always been normal in terms of vitamin and mineral levels and that this was a good indication of health. But we chatted some more: I know we PWP want answers to where it all went wrong. At what point was this crappy disease generated? Did I exercise enough? Did I eat my greens? Have I too much sugar in my diet? And of course It goes on 😊. But he said something that I’d never considered and in a way it made me feel good about myself and almost gave me a chance to rid myself of the guilt I carry around in terms of self blame: imagine the sickest person on their deathbed. Tubes all over the place, extremely weak vital signs, all sorts of data indicating that organs are close to shutting down, only just breathing, too tired to lift the bedclothes. Guess what? Yep, they’re still generating dopamine. Yet another stupid aspect of this nightmare I can add to my list that I posted recently

[Buckholt]

It is easy to spot a pattern on this forum, and we rely totally on new members to keep carrying the torch. In the beginning, I think we all probably think that for us it will be different, we’ll be the ones that find a way of stopping or reversing the disease with a new therapy, supplement, exercise regime or weird gadget. Initial energy and hunger for knowledge slowly gives way to reality and acceptance and eventually we all end up relying on big pharma for help.

New members come along, (we all hoped that they wouldn’t), and move the discussion and research along. And so it goes on. Glad you’re still posting, even if there’s not much to say!

[jeeves19 in reply to Buckholt]

Thanks Buckholt. Appreciated and i hope that you’re doing ok too. 😊

[Boscoejean in reply to Buckholt]

the part about the new members for sure

[Despe]

After we try everything that a "new trial" suggests with promising results in Phase I, we are looking forward to Phase II, maybe Phase III, but never getting the promising "cure," we are so disappointed and pessimistic, we just simply give up! We continue the countless supplements/minerals/vitamins because we believe we are kind of protected from further progression. However, every PWP is unique with a unique DNA, and progression is tantamount to each PWP's DNA, age, cause, etc.

We all looking for that "silver bullet." Where will it come from? Who knows!

Any regrets for your DBS?

[jeeves19 in reply to Despe]

Not really. It’s not perfect but I get by,, can turn over in bed, go out and about, gym etc. main issue is my voice which is erratic in its ability to deliver.