Getting Closer in Switzerland from Dr. Gallay....

[eschneid]

I've promised you some news, but I still have to wait for everything to be signed before I can proceed with the organization of pending consultations and treatments (there's still a question of reimbursement). But we're very close.The practice/new clinic is called SIFUS and is officially registered, we plan to open consultations in Ostermundigen-Bern from September 2024, but are waiting for the purchase of the machine to be secured before planning the dates. We hope you'll have a little (more) patience. In thought with you. Marc Gallay

[AGH_1966]

Thank you 😊. This is not relevant to anything medical but your post unlocked memories of a long hot summer in 1984 that I feel compelled to share for my own sake despite no one else caring.

My Scottish cousin Sandra had married a Swiss policeman, Hans, and I remember me and a mate spending that long, hot summer as 18 year olds at their apartment at Tagletistrasse 7 in Ostermundigen. One of Hans' tasks was being on duty every afternoon at the beautiful outdoor swimming complex, so we got in for free. In the evening Sandra would wheel the TV onto the balcony so we could watch the Euro 84 football and keep us supplied with beer and food. Life went downhill for me from that point. 😤🤣

If nothing else, thanks for bringing back the he memories! 👍

[Smokeypurple in reply to AGH_1966]

Very evocative thanks for sharing AGH_1966 !

[eschneid in reply to AGH_1966]

Focus more on those good memories and produce some good chemicals in your brain instead of Cortisol for a change.

[Smokeypurple]

Thanks for the update eschneid

[jeeves19]

I first came across FUS about 5 years ago and thought it was pretty exciting and the treatment of the future, not that I would ever be able to afford it. But 5 years on and the process doesn’t appear to have proliferated as widely or a quckely as I imagined it would?

[Canddy in reply to jeeves19]

I feel the same way jeeves19

[eschneid in reply to jeeves19]

Jeeves,

I feel like FUS is on the way up. They're starting to use it for Prostate Cancer and all sorts of other cancers and many things that used to require cutting somebody or other invasive procedure.

How are you doing with your DBS and the programming. Hope you are getting the help you need in a timely way.

[jeeves19 in reply to eschneid]

Yeah, thanks. I’m doing okay. Voice is the major drawback but I’m definitely getting back into the vigorous exercise again recently which seems to be achieving some slight reversal of disease progression.

[eschneid in reply to jeeves19]

Jeeves........... Sounds good and pretty upbeat. Glad to hear it's working for you. Is your voice just quiet--or is your speech unclear? A person in our Sunday Zoom group had PTT-FUS and it was a temporary side effect.

[PalmSprings]

Thanks for sharing.

[jeeves19]

it is both at times 😂. I have 2 channels on the controller: one is more powerful than two but hampers my articulation and makes me slur my words. Thank God for No. 2!

[eschneid in reply to jeeves19]

You would think by now there would be more than 2 channels so you could get a more refined result. Like you say, TG for number 2 until then. If you are ever in the mood & no pressure at all, Marc of MBAnderson hosts about 30-40 of us HUers on Sunday at 5pm your time, noon in NY. It's a great group and there are a good number of peeps from the UK, France, Canada, etc... and we could use some DBS real time info. Most of us are leaning to less invasive FUS. Anyway, here is the link and feel free. Best, Eric (eschneid)

us02web.zoom.us/j/833522248...

[jeeves19 in reply to eschneid]

Thanks Eric. I think my problem with FUS is:

It’s not really regulated by any national organisation as far as I know, it’s astronomically expensive and once it’s done it’s done. Not much wriggle room to modify things as the disease progresses. I wish you well however and hope things work out for you. 😃