latest on niacin, nicotinamide, etc.…?

[Jojaku123]

Hey Gang! So what is the latest with niacin? I only take Tru Niagen, but I’ve read multiple posts about niacin, nicotinamide, etc. Does anyone have an idea of which is best for slowing PD progression? I feel a bit overwhelmed with the surfeit of data! Any advice would be greatly appreciated 🙏

[Windermere1]

like you I take TruNiagen and have done for 3 years to fix my RLS. It worked wonders and still does. I also have PD for last 5 years so not sure if truN is helping Pd alongside c/l and other supplements. I also follow b1 protocol and that has produced great results for PD

[Jojaku123 in reply to Windermere1]

interesting and good to know! I almost decided to try the B1 protocol but was a little intimidated because it seems like you have to go up and down with your dosage and monitor it and it seems a bit mysterious to be honest… How have you found that aspect of it?

[Windermere1 in reply to Jojaku123]

I found it very easy over 2 years ago. Before starting you need to add 144 elemental magnesium daily and a good bcomplex with all low bs for 2/3 weeks before starting b1. I chose b1 sublingual from superior source Started as per the protocol of 50mg MWF each week. And achieved success in less than 4 weeks. Numerous symptoms were resolved and still are. I have a utube video called Parkinson’s b1 therapy Julie’s success story which show and tells of my improvements. Best wishes. Give it a try.

[Jojaku123 in reply to Windermere1]

Thank you for the thorough explanation and your well wishes! I really appreciate this

[CV119]

Could someone point me out to the correct protocol? I have the book but dont recall quite well specifics on how to progressively increase the dose

[greenveggies]

Be careful with high dose niacin (nicotinic acid). I did a protocol of increasing the dose gradually to a high dose and getting the flush for RA and I ended up in hospital for 2 weeks.. Severe hepatic toxocity. I was completely yellow and it took me over a year to get over the resulting side effects. I lost 5 kilos in a couple of weeks and could hardly eat and I was already slim. Doctors thought I had haemochromatosis as I have the gene. My iron levels and other vitamin levels were off the chart. After doing 3 blood lettings I then became anaemic which took another year to sort out with low b12 levels etc. Thank God I found a really good rheumatologist who is into nutrients and micro nutrition but as a result of this crisis my RA became worse. I don't take mexotrate or anything else. I'm doing the AIP elimination diet and intend to start Ivermectine. I didn't up until now to due to restrictions in purchasing.

[Jojaku123 in reply to greenveggies]

Wow that is an amazing story. I’m so glad you’re still alive to tell about it. I’m very sorry for your struggles, but grateful for your taking the time to share this. Thank you so much. Best of luck to you my friend.