Were you misdiagnosed?

[Dabaa]

How many of you have been misdiagnosed? A differential diagnosis deeper dive has convinced me my PD is really MSA (Multiple System Atrophy) - anyone else?

[Rather]

I was told there' sa possibility of my having

MSA. Some of my symptoms are dual incontinence, low heart rate, erratic blood pressure, fatigue, speech problems,

Edema, stiff muscles spasms,slow bowels motility, and weakness???

[Everycloudhasa]

Hello Dabaa,

I’m sorry to read of your illness and experiences.

I was misdiagnosed with ME in 2012 and again in 2017 by the same private Consultant Neurologist.

Five months later, in 2018, I was diagnosed with Early Onset Parkinson’s Disease by a National Health Service Consultant Neurologist and provided with life altering medications.

Six years of potential medication lost and deprived of valuable time to make future life plans.

Take care……

[Dabaa in reply to Everycloudhasa]

That's sucky. I feel your grief for the wasted years because something similar happened to me: I presented to my local GP for six years with debilitating pain and chronic fatigue and was repeatedly dismissed as a malingerer. Within a few months of living in Germany, I was diagnosed with Hemochromatosis and began 'de-ironing' because I'd finally found a Doc who cared enough and was skilled enough to connect the dots - she achieved in a few months what NHS docs couldn't in six years! GBY.

[Everycloudhasa in reply to Dabaa]

Always here if you need to reach out.

At least there are caring professionals we have both been fortunate enough to finally encounter.

Best wishes….

[Gymsack]

I have been seeing a neurologist (different ones ) for about 20 years and at every single meeting they have asked me to hold my hands out and quickly touch my fingers to my thumb and to look up and down and then walk a short distance and I imagine that you have experienced this also. At the end they always say "Yes, it is just Parkinson's"

20 years and they still check, sure there is a posssibility and I have the same symptoms as Rather but Levadopa works . Try not to worry about things that you can not do anything about, it makes the PD worse.

Be happy

[kaypeeoh]

I've never been convinced I have PD. But I don't look deeper because all of the other conditions that resemble PD are much, much worse that PD.