Pause a moment for absent friends

[jeeves19]

Gang. I’ve been a member of this community for 8 years now and I feel that I’ve got some decent friends here. But then it strikes me that certain people stop communicating and I have to accept that they may have expired and not necessarily of Parkinson’s.. PD isn’t a young person’s disease despite the media’s attempts to persuade the world that ‘anybody of any age can get Parkinson’s’ and I suppose that we have to accept that many of the community will have other health issues, sometimes with fatal consequences. I’m not advocating that we have a marble bust of them sculpted or get a blue plaque fixed to their home, but it does seem a shame to me that some members contribute much and then vanish without them knowing how much good they did here or that we’d have liked to have bid farewell. One person I remember fondly was Doug Magee (DMcgee) who always struck me as such a kind soul. He hasn’t made a contribution for 11 months, and I think that he had heart issues, maybe that’s caught up with him. But I’ll leave by saying how much I’ll miss some of you in time should I ever do the disappearing and offer an extract from one of Doug’s replies that seem to capture his essence:

I appreciate your support! It’s like I’ve said for the last five years on this forum, I get my best support and advice, and understanding, not from Doctors, Medical providers, or family, but from my fellow sufferers, of Parkinson’s Disease, in this forum! Thanks to all who contribute to HealthUnlocked.com! You are all a blessing to me.

[pdpatient]

Hello, jeeves19 I hope you are doing okay. This post is foreboding although the intent seems to be a tribute to presumably fallen warriors. I applaud the sentiments though.

[jeeves19 in reply to pdpatient]

I’m not going anywhere in the near future PD, but thanks for the concern. No, it is indeed a tribute to as you say ‘fallen warriors’. A lovely phrase.

[xy-zt in reply to jeeves19]

Thanks for the post. Well said.

[Smittybear7]

thanks for all your contributions!

[DEAT]

That is such a thoughtful post. I've been here for about 8 years too There are so many PWP I don't hear from anymore. And I to wonder where they are.

I get sooo much information from the group and really appreciate being here

[Buckholt]

Good post. The member that made an impression on me when I first arrived was Bailey_Texas. Very positive and seemed like a big personality. He hasn’t been around for a couple of years but Hope he’s OK.

[pdpatient in reply to Buckholt]

Yes I do remember him. He was building a massive garage if I remember correctly.

Amazing how we can become a community of peers and caregivers albeit semi anonymous 😇👍

[jeeves19]

I think Bailey left in a huff cause he disagreed with B1 which was all the rage at the time.

[JeanieBeanie in reply to jeeves19]

How did you do with B1 Jeeves? Trying my HWP on a low dose. This is 4th attempt but I think the DBS and getting the meds right with it causes confusion but there has been a slight improvement I think.

[pdpatient in reply to JeanieBeanie]

I got high blood pressure when I was on the protocol. Now that I have low blood pressure constantly, I wish I was on it.

The problem is that if you have more than one disease, it is tough to try so many different things because it confuses you and your doctors and your caregivers.

[Gigi_12]

I appreciate everyone's sharing and support and have been part of this group for about 2 years. I don't comment often but read the information daily and trust the information given. I am trying the B1 again( 1 sublingual 3 times a week) and hope to get some positive results. This is my 3rd week and I do think I'm seeing some small benefits in mood and strength . I've tried several times over the last year with no luck so hope I can find the sweet spot. Thank you .

[Annieartist]

where would we be without this forum. ? Can’t imagine- my neurologist retired during COVID I barely communicate with the medical professional but I gratefully appreciate your advice

[PalmSprings]

I really appreciate this post. I too have felt the most support from this forum and I value all of you, the members, so very much. I have learned from you, felt empathy, compassion and truthfully, I have felt more understood by this collective group than from anywhere else. Thanks for being there!

[JohnPepper]

Hi Jeeves

I know you don't like me or don't believe me. The liking does not worry me but not believing me does worry me.

If you don't believe me, would a letter from my neurologist satisfy you?

I was diagnosed in 1992 and only took medication for the first two years. Since then I have been successfully doing the FAST WALKING EVERY SECONDD DAY FOR ONE HOUR.

There are young-onset patients and I have known some of them.

How long hav eyou had OD?

[WinnieThePoo in reply to JohnPepper]

Since when was this about you John? You have just responded to a point that wasn't made. You have just completely changed the subject and tried to make it about you and fast walking, when in fact it was about people who are no longer here

It's not that folk don't like you John. It's that they don't like that rude, vain, selfish behaviour. It's not about you. Butt out!

youtube.com/watch?v=mQZmCJU...(Not working as expected?)

[JohnPepper in reply to WinnieThePoo]

I don't know what happened but that reply was not for that article.

[Astra7]

I always look to see if you’ve posted. We got sick at the same time and your name us memorable.

What happened to Asperger, Bailey etc.

Good to see John Pepper!!

I just don’t post any more as there is nothing new to say, although I’m excited by the PS128 possibilities.

[jeeves19 in reply to Astra7]

Hi Astra. Good to hear from you. As I said in another post, I think Bailey got the huff about the B1 craze and left in disgust!

[Ponieboy]

I'm here, just been busy with work and spending time with my wife. She was diagnosed with Stage 4 metastatic colon cancer. She is doing ok right now, they took her off chemo because it wasn't working, she will have a PET scan and after that update potential surgery and chemo. Life is short and precious. The plan when I was diagnosed with PD was for her to help take care of me. Now I am going to be taking care of her with what time she has left. I pop on here just to keep up. Just in lurker mode.

[pdpatient in reply to Ponieboy]

My prayers are with you and your wife It is difficult and painful to have a couple battling two life defying conditions.

[Ponieboy in reply to pdpatient]

Thank you.

[jeeves19 in reply to Ponieboy]

That’s a really tough call mate. Sorry that you find yourself in such an unenviable position.

[Cjbro2000]

That’s a very nice thought, Jeeves. I often wonder about some regular posters who seem to have fallen off the radar. I hope they’re just busy taking one day at a time.

CarolB