Mom is back to ER

[Blueclouds07]

Hello, we took my mother yesterday to the ER, they did new blood for her and phosphor level was very low they gave her phosphorous IV replacement. Also they found out that the Na level was low and they said she looked dehydrated and decided to admit her. Today the medicine team came and told me that she has been admitted two weeks ago because of electrolyte imbalance and because it has not been corrected she is still having the same problem! OK, then he said he is suspecting liver cirrhosis and that’s why her liver can’t metabolize the milk she is taking so she will need a hepatic diet. Then he ordered ultrasound just to confirm his diagnosis, she did it and found out that results are normal. Then he told me that the reason would be improper feeding! I am not convinced about that! Did anyone pass through a situation like that? Or it could be they don’t know how to manage such cases with PSP?

Appreciate your reply

[LindaP50]

Frustrating for both you and your Mom. I don't know much about PSP but wanted to acknowledge you and your post.

Perhaps a nutritionist would be most helpful at this point along with seeing the primary care doctor. ER is good to help with an immediate situation and then follow-up with your Mom's care team of doctors. Perhaps primary care doc can order some blood work to check her liver and more. Make sure nutritionist and primary care doc knows about the ER visits and their findings (or lack of findings).

My hubby has PD and every 2 weeks or sooner will make sure he drinks a Gatorade for the electrolytes which doctors said is a good practice.

Good luck to you both. Keep the hope.

[Blueclouds07 in reply to LindaP50]

Thank you 🥰

[Agnes1234]

The literature indicates that PSP can also be associated with electrolyte abnormalities of various sorts. You may need more guidance in reviewing her diet and fluid intake during the day and more pro-active monitoring of electrolyte levels to catch abnormalities earlier before they cause a trip to the ER.

[Blueclouds07 in reply to Agnes1234]

Thanks a lot

[MarionP]

Ever see the medical TV show House? Sometimes the investigation takes many steps and twists. Be patient and keep working with them. Every possibility has to be investigated and run to ground, don't take it personal and don't think it's unprofessional, just keep at them. Sometimes it takes this process of elimination, remember that and remind them of that, without getting all worked up. But do keep immediate follow up with the primary care provider and any specialists involves, don't wait around for people to catch up with each other, be the lynchpin and converse with them actively.

[Blueclouds07 in reply to MarionP]

I will do that

Thanks a lot