Rasagiline

[edmich]

I have taken Rasagiline for 6 months with no side effects. Neurologist said that it may delay disease progression. Just bought 90 day supply of 1 mg for $100 with GoodRx

[gaga1958]

are you working with a MDS (movement disorder specialist) or a general neurologist?

My MDS stated back in 2008-9 it was theorized that Rasagiline could slow PD progression but that has since been disproven.

[Lyricist]

I have been on Rasagiline since diagnosis 7 years ago. At my last repeat scrip (NHS UK) the pharmacy claimed it was becoming impossible to source from abroad and after taking advice from my Consultant Neurologist I was switched to Safinamide which I was told could be substituted easily with no changeover washout, but which might not be available in future if NHS refused to prescribe on costs grounds. Is there really a shortage of Rasagiline? Is there really a manufacturing problem? If cost is also a barrier, what alternatives are out there to take the place of Rasagiline?

[LagLag37 in reply to Lyricist]

You can probably look up the manufacturer and see if they will tell you anything. I’ve called Mylan and Sun before.

edmich

I’ve been on Rasagiline since almost the beginning (about 15yrs) and I think it does help slow the progression. I went off it for about 3 months and I could tell a difference in my fine motor skills. 🥊

[Lyricist]

thanks I will look into that suggestion

[Jefferami]

I was diagnosed this year and I've also read that the results are open to debate. Yet two of the foremost neurologists in the uk that I saw for consulations both recommended I take rasagiline as they still believe it has protective properties. Sometimes you have to trust they know what they are doing.